Barriers and Benefits Experienced by Caregivers Seeking Medical Care for Their Children with Autism Spectrum Disorders: a Qualitative Meta-synthesis

被引：2

作者：

Douglas, Sarah N. ^{[1
]}

Jensen, Emily J. ^{[1
]}

West, Patricia ^{[2
]}

机构：

[1] Michigan State Univ, Human Ecol, Human Dev & Family Studies, 552 W Circle Dr, E Lansing, MI 48824 USA

[2] Michigan State Univ, Coll Nursing, Life Sci, 1355 Bogue St, E Lansing, MI 48824 USA

来源：

REVIEW JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 10卷 / 03期

关键词：

Autism spectrum disorders; Medical care; Qualitative meta-synthesis; Caregiver; Perspectives; EMERGENCY-DEPARTMENT CARE; FAMILY-CENTERED CARE; HEALTH-CARE; HOSPITALIZED-PATIENTS; PARENTS; PERSPECTIVES; MODEL; PERCEPTIONS; PROVIDERS; ADOLESCENTS;

D O I：

10.1007/s40489-022-00306-w

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Limited research has explored the experiences of caregivers and their children with autism spectrum disorder (ASD) in medical settings. A qualitative meta-synthesis of studies published between 2000 and 2020 was conducted to understand and summarize the challenges faced by caregivers, their positive experiences, and suggestions for improving medical care. Themes were generated related to caregiver challenges, positive experiences, and suggestions to improve medical care. We suggest additional training of medical professionals, an interdisciplinary approach to care, more support for caregivers, and increased adaptability of the medical environment. Implications for practice, limitations, and future research directions are discussed to ensure the highest quality care to support the needs of children with ASD and their caregivers.

引用

页码：492 / 504

页数：13

共 62 条

[1]

Bartolome-Villar Begona, 2016, J Clin Exp Dent, V8, pe344, DOI 10.4317/jced.52923

[2] Parental Perception of the Perioperative Experience for Children With Autism [J].

Benich, Sarah ;

Thakur, Shreya ;

Schubart, Jane R. ;

Carr, Michele M. .

AORN JOURNAL, 2018, 108 (01) :34-43

[3] "We were on our own": Mothers' experiences navigating the fragmented system of professional care for autism [J].

Brewer, Alexandra .

SOCIAL SCIENCE & MEDICINE, 2018, 215 :61-68

[4] Reducing Barriers to Care in the Office-Based Health Care Setting for Children With Autism [J].

Bultas, Margaret W. ;

McMillin, Stephen Edward ;

Zand, Debra H. .

JOURNAL OF PEDIATRIC HEALTH CARE, 2016, 30 (01) :5-14

[5] The Health Care Experiences of the Preschool Child With Autism [J].

Bultas, Margaret W. .

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2012, 27 (05) :460-470

[6] The Medical Home for Children with Autism Spectrum Disorders: Parent and Pediatrician Perspectives [J].

Carbone, Paul S. ;

Behl, Diane D. ;

Azor, Virgina ;

Murphy, Nancy A. .

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2010, 40 (03) :317-324

[7] "You think it's hard now ... It gets much harder for our children": Youth with autism and their caregiver's perspectives of health care transition services [J].

Cheak-Zamora, Nancy C. ;

Teti, Michelle .

AUTISM, 2015, 19 (08) :992-1001

[8] Parent and Provider Perspectives on Procedural Care for Children with Autism Spectrum Disorders [J].

Davignon, Meghan N. ;

Friedlaender, Eron ;

Cronholm, Peter F. ;

Paciotti, Breah ;

Levy, Susan E. .

JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS, 2014, 35 (03) :207-215

[9] Parents' perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration [J].

Duker, Leah I. Stein ;

Henwood, Benjamin F. ;

Bluthenthal, Ricky N. ;

Juhlin, Emma ;

Polido, Jose C. ;

Cermak, Sharon A. .

RESEARCH IN AUTISM SPECTRUM DISORDERS, 2017, 39 :63-72

[10]

Duker LIS, 2019, PEDIATR DENT, V41, pE4

← 1 2 3 4 5 6 7 →