The focus of our research was a truly unique approach: we examined the ac- tivities of NGOs providing advocacy for WS syndrome, including their musical ac- tivities, as a means of inclusion, inclusion, skill and personality development, and social integration. The specific symptom complex of WS and its special relationship with music and their average or above average musical abilities, the music -related descriptions of the disorder that can be found in the literature, the presentation of cases of WS with exceptional musical talent available in the literature and other documents, all suggest that research on the connection between the disorder and music is timely and important. And research on music -related activities organized and implemented by NGOs is a particularly innovative, gapfilling approach, which is not covered at all or only to a very minimal extent in the available literature. Despite the fact that the disorder itself, the specific symptom cluster of WS, the diagnostic, treatment and developmental options, and the results of the WS are richly repre- sented in the literature, the research results on music are mostly focused on the presentation of outstanding cases and the measurement of musical abilities. There is currently no literature available to explore how and in what ways the WS inter- est groups, especially the civil sector, integrate music, development through music,and catch-up into the special care and treatment of WS children and adults. The above -mentioned has inspired us to search for, list and map NGOs worldwide and to collect and summarize all activities related to music. Our research has shown that NGOs have also recognized the importance of music in WS and that music -related activities are an integral part of their activities. Out of the 19 organizations we studied, 12 were found to have organized their own music -related activities. In the field of music -related activities, five main categories of activities were identified as being present in the activities of the organizations: music therapy, music education, music -related camps, participation in a band and attendance at music -related events. It is worth highlighting the fact that 9 of the 12 organizations that we have studied that organize musical activities have music therapy or music education activities, the main aim of which is to develop, heal and promote inclusion through music. The research also presented the activities of 3 institutions that provide music education and training in an institutional setting, adapted to the specific needs of WS. Our research also revealed that there is a unique method of music education for people with WS, the Ulwila method, which is perfectly adapted to the specific symptom complex of WS and allows for a higher level of music skills and instrumental learning.
