Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management

被引:2
作者
Mendes Pereira, Carla [1 ,2 ]
Matos, Mara [1 ]
Carvalho, Daniel [3 ]
Macedo, Patricia [4 ,5 ]
Calheiros, Jose M. [6 ]
Alves, Janice [7 ]
Paulino Ferreira, Luis [8 ]
Dias, Teresa L. [1 ]
Neves Madeira, Rui [4 ,9 ]
Jones, Fiona [10 ]
机构
[1] Polytech Univ Setubal, Sch Hlth, Dept Physiotherapy, P-2910761 Setubal, Portugal
[2] NOVA Univ Lisbon, Comprehens Hlth Res Ctr CHRC, P-1150082 Lisbon, Portugal
[3] Local Hlth Unit Litoral Alentejano ULSLA, P-7540230 Santiago Do Cacem, Portugal
[4] Polytech Univ Setubal, Res Ctr Engn Sustainable Dev Sustain RD, Setubal Sch Technol, P-2910761 Setubal, Portugal
[5] NOVA Sch Sci & Technol, Ctr Technol & Syst UNINOVA CTS, P-2829516 Caparica, Portugal
[6] Univ Fernando Pessoa, Inst Res Innovat & Dev FP I3ID, P-4249004 Porto, Portugal
[7] Setubal Hosp Ctr, Neurol Dept, P-2910446 Setubal, Portugal
[8] Setubal Hosp Ctr, Dept Psychiat & Mental Hlth, P-2910446 Setubal, Portugal
[9] NOVA Univ Lisbon, NOVA Sch Sci & Technol, NOVA Lab Comp Sci & Informat NOVA LINCS, P-2829516 Caparica, Portugal
[10] St Georges Univ London, Populat Hlth Res Inst, London SW17 0RE, England
关键词
self-efficacy; self-management; stroke; change behavior; co-production; eHealth; usability; quality; mHealth; SYSTEM; INTERVENTIONS; EDUCATION; RECOVERY; OUTCOMES; TOOL;
D O I
10.3390/jcm13010300
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Evidence-informed interventions for stroke self-management support can influence functional capability and social participation. People with stroke should be offered self-management support after hospital discharge. However, in Portugal, there are no known programs of this nature. This study aimed to develop a person-centered and tailored blended care program for post-stroke self-management, taking into account the existing evidence-informed interventions and the perspectives of Portuguese people with stroke, caregivers, and health professionals. An exploratory sequential mixed methods approach was used, including qualitative methods during stakeholder consultation (stage 1) and co-production (stage 2) and quantitative assessment during prototyping (stage 3). After ethical approval, recruitment occurred in three health units. Results from a literature search led to the adaptation of the Bridges Stroke Self-Management Program. In stage one, 47 participants were interviewed, with two themes emerging: (i) Personalized support and (ii) Building Bridges through small steps. In stage two, the ComVida program was developed, combining in-person and digital approaches, supported by a workbook and a mobile app. In stage three, 56 participants evaluated prototypes, demonstrating a strong level of quality. Understandability and actionability of the developed tools obtained high scores (91-100%). The app also showed good usability (A-grade) and high levels of recommendation (5 stars).
引用
收藏
页数:20
相关论文
共 71 条
[1]   Encouraging Behavior Changes and Preventing Cardiovascular Diseases Using the Prevent Connect Mobile Health App: Conception and Evaluation of App Quality [J].
Agher, Dahbia ;
Sedki, Karima ;
Despres, Sylvie ;
Albinet, Jean-Pierre ;
Jaulent, Marie-Christine ;
Tsopra, Rosy .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2022, 24 (01)
[2]   Health promotion by social cognitive means [J].
Bandura, A .
HEALTH EDUCATION & BEHAVIOR, 2004, 31 (02) :143-164
[3]   SELF-EFFICACY - TOWARD A UNIFYING THEORY OF BEHAVIORAL CHANGE [J].
BANDURA, A .
PSYCHOLOGICAL REVIEW, 1977, 84 (02) :191-215
[4]  
Braun V., 2006, Qual Res Psychol, V3, P77, DOI [DOI 10.1080/14780887.2020.1769238, DOI 10.1191/1478088706QP063OA]
[5]  
Brito M.d.S., 2021, J. Investig. Mdica, V2, P6, DOI [10.29073/jim.v2i1.293, DOI 10.29073/JIM.V2I1.293]
[6]   Development of an electronic health message system to support recovery after stroke: Inspiring Virtual Enabled Resources following following Vascular Events (iVERVE) [J].
Cadilhac, Dominique A. ;
Busingye, Doreen ;
Li, Jonathan C. ;
Andrew, Nadine E. ;
Kilkenny, Monique F. ;
Thrift, Amanda G. ;
Thijs, Vincent ;
Hackett, Maree L. ;
Kneebone, Ian ;
Lannin, Natasha A. ;
Stewart, Alana ;
Dempsey, Ida ;
Cameron, Jan .
PATIENT PREFERENCE AND ADHERENCE, 2018, 12 :1213-1224
[7]   A mixed-methods feasibility study of a new digital health support package for people after stroke: the Recovery-focused Community support to Avoid readmissions and improve Participation after Stroke (ReCAPS) intervention [J].
Cameron, Janette ;
Lannin, Natasha A. ;
Harris, Dawn ;
Andrew, Nadine E. ;
Kilkenny, Monique F. ;
Purvis, Tara ;
Thrift, Amanda G. ;
Thayabaranathan, Tharshanah ;
Ellery, Fiona ;
Sookram, Garveeta ;
Hackett, Maree ;
Kneebone, Ian ;
Drummond, Avril ;
Cadilhac, Dominique A. .
PILOT AND FEASIBILITY STUDIES, 2022, 8 (01)
[8]   Enablers and barriers in hospital-to-home transitional care for stroke survivors and caregivers: A systematic review [J].
Chen, Langduo ;
Xiao, Lily Dongxia ;
Chamberlain, Diane ;
Newman, Peter .
JOURNAL OF CLINICAL NURSING, 2021, 30 (19-20) :2786-2807
[9]   Long-term unmet needs after stroke: systematic review of evidence from survey studies [J].
Chen, Ting ;
Zhang, Bo ;
Deng, Yan ;
Fan, Jing-Chun ;
Zhang, Liansheng ;
Song, Fujian .
BMJ OPEN, 2019, 9 (05)
[10]   The key features and role of peer support within group self-management interventions for stroke? A systematic review [J].
Clark, Ella ;
MacCrosain, Alison ;
Ward, Nick S. ;
Jones, Fiona .
DISABILITY AND REHABILITATION, 2020, 42 (03) :307-316