Considerations for Advanced Heart Failure Consultation in Individuals With Fontan Circulation: Recommendations From ACTION

被引:20
作者
Lubert, Adam M. [1 ,2 ]
Cedars, Ari [3 ]
Almond, Christopher S. [4 ,5 ]
Amdani, Shahnawaz [6 ]
Conway, Jennifer [7 ]
Friedland-Little, Joshua M. [8 ]
Gajarski, Robert J. [9 ]
Kindel, Steven J. [10 ,11 ]
Lorts, Angela [2 ]
Morales, David L. S. [2 ,12 ]
O'Connor, Matthew J.
Peng, David M.
Rosenthal, David N. [4 ,5 ]
Smyth, Lauren [2 ]
Sutcliffe, David L.
Schumacher, Kurt R.
机构
[1] Cincinnati Childrens Hosp, 3333 Burnet Ave, Cincinnati, OH 45229 USA
[2] Univ Cincinnati, Cincinnati Childrens Hosp Heart Inst, Dept Pediat, Coll Med, Cincinnati, OH USA
[3] Johns Hopkins Univ, Baltimore, MD USA
[4] Stanford Univ, Sch Med Pediat, Palo Alto, CA USA
[5] Stanford Childrens Hlth, Palo Alto, CA USA
[6] Cleveland Clin Childrens, Cleveland, OH USA
[7] Stollery Childrens Hosp, Edmonton, AB, Canada
[8] Seattle Childrens Hosp, Seattle, WA USA
[9] Nationwide Childrens Hosp, Columbus, OH USA
[10] Childrens Hosp Philadelphia, Milwaukee, WI USA
[11] Univ Michigan, Congenital Heart Ctr, CS Mott Childrens Hosp, Ann Arbor, MI USA
[12] Childrens Mercy Hosp, Kansas City, MO USA
关键词
congenital heart disease; Fontan procedure; heart failure; transplantation; ventricular dysfunction; PROTEIN-LOSING ENTEROPATHY; LONG-TERM OUTCOMES; ORAL BUDESONIDE; PROGNOSTIC VALUE; FOLLOW-UP; OPERATION; SURVIVAL; MORTALITY; EXPERIENCE; TRANSPLANT;
D O I
10.1161/CIRCHEARTFAILURE.122.010123
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Individuals with Fontan circulation are at risk of late mortality from both cardiac and noncardiac causes. Despite the known risk of mortality, referral indications for advanced heart failure care vary between centers, and many individuals die from Fontan circulation-related complications either after late consideration for advanced heart failure therapies or having never seen a heart failure specialist. There is a critical need for guidelines to direct appropriately timed referral for advanced heart failure consultation. The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Fontan Committee has developed recommended thresholds for advanced heart failure referral to guide primary cardiologists. These recommendations are divided into 4 categories of clinical Fontan circulatory dysfunction including (1) cardiac/systemic ventricular dysfunction, (2) Fontan pathway dysfunction, (3) lymphatic dysfunction, and (4) extracardiac dysfunction.
引用
收藏
页码:219 / 228
页数:10
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