Norwegian paediatric habilitation centres judge their own competence on cerebral visual impairment as limited

被引:1
作者
Friede, Pamela [1 ]
Hollung, Sandra Julsen [2 ,3 ]
Vik, Torstein
Andersen, Guro Lillemoen [2 ,3 ]
Cameron, David Lansing [1 ]
de Rodez, Sigrid Aune [4 ]
Haugen, Olav H. H. [5 ,6 ]
Lundervold, Tonje [7 ]
Nicholas, Jude [7 ]
Stadskleiv, Kristine [8 ,9 ]
机构
[1] Univ Agder, Dept Educ, Kristiansand, Norway
[2] Vestfold Hosp Trust, Norwegian Qual & Surveillance Registry Cerebral Pa, Tonsberg, Norway
[3] Norwegian Univ Sci & Technol, Dept Clin & Mol Med, Trondheim, Norway
[4] Oslo Univ Hosp, Dept Ophthalmol, Oslo, Norway
[5] Haukeland Hosp, Dept Ophthalmol, Bergen, Norway
[6] Univ Bergen, Dept Clin Med K1, Bergen, Norway
[7] Statped, Natl Serv Special Needs Educ, Bergen, Norway
[8] Univ Oslo, Dept Special Needs Educ, Sem Saelands vei 7, N-0371 Oslo, Norway
[9] Oslo Univ Hosp, Dept Clin Neurosci Children, Oslo, Norway
关键词
assessment; cerebral palsy; cerebral visual impairment; cortical visual impairment; screening; CHILDREN;
D O I
10.1111/apa.16778
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Aim: Cerebral visual impairment (CVI), a frequently occurring functional impairment in children with neurodevelopmental disorders, leads to communicative, social and academic challenges. In Norway, children with neurodevelopmental disorders are assessed at paediatric habilitation centres. Our aims were to explore how CVI is identified, how paediatric habilitation centres assess their CVI competence and the reported prevalence of CVI among children with cerebral palsy.Methods: An electronic questionnaire was sent to all 19 Norwegian paediatric habilitation centre leaders in January 2022. The results were analysed quantitatively and qualitatively. The prevalence of CVI among children with cerebral palsy was estimated using register-based data.Results: The questionnaire was answered by 17. Only three judged their habilitation centre as having sufficient competence on CVI. None of the centres used screening questionnaires systematically, and 11 reported that CVI assessment was not good enough. Awareness that a child may have CVI typically occurred during examinations for other diagnoses. The prevalence of CVI among children with cerebral palsy was only 8%, while CVI status was unknown in 33%.Conclusion: Better knowledge and assessment of CVI at Norwegian paediatric habilitation centres are needed. CVI appears to be often overlooked in children with neurodevelopmental disorders.
引用
收藏
页码:1530 / 1536
页数:7
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