SHARING Choices: Lessons Learned from a Primary-Care Focused Advance Care Planning Intervention

被引:6
作者
Colburn, Jessica L. [1 ]
Scerpella, Daniel L. [2 ]
Chapin, Margo [3 ]
Walker, Kathryn A. [4 ]
Dy, Sydney M. [4 ]
Saylor, Martha Abshire [5 ]
Sharma, Neha [6 ]
Rebala, Sri [6 ]
Anderson, Ryan E. [7 ]
McGuire, Maura [8 ]
Hussain, Naaz [9 ]
Rawlinson, Christine [9 ]
Cotter, Valerie [5 ]
Cockey, Kimberly [4 ]
Roth, David L. [11 ]
Nicholson, Karyn Lee Carlson [12 ]
Giovannetti, Erin Rand
Sancho, Marcella B. [13 ]
Echavarria, Diane [2 ]
Boyd, Cynthia M. [1 ]
Wolff, Jennifer L. [2 ]
Smith, Kelly M. [10 ,14 ,15 ]
机构
[1] Johns Hopkins Univ, Sch Med, Div Geriatr Med & Gerontol, 5200 Eastern Ave,Suite 2200, Baltimore, MD 21224 USA
[2] Johns Hopkins Bloomberg Sch Publ Hlth, Dept Hlth Policy & Management, Baltimore, MD USA
[3] Johns Hopkins Univ, Baltimore, MD USA
[4] MedStar Hlth, Palliat Care, Columbia, MD USA
[5] Johns Hopkins Sch Nursing, Baltimore, MD USA
[6] MedStar Hlth, Columbia, MD USA
[7] MedStar Hlth, Clin Care Transformat, Columbia, MD USA
[8] Johns Hopkins Community Phys, Baltimore, MD USA
[9] Johns Hopkins Community Phys, Frederick, MD USA
[10] MedStar Hlth, MedStar Hlth Inst Qual & Safety, Columbia, MD USA
[11] Ctr Aging & Hlth, Div Geriatr Med & Gerontol, Baltimore, MD USA
[12] Johns Hopkins Med Off Populat Hlth, Baltimore, MD USA
[13] JHCP Mt Washington Campus Marbury Bldg, Baltimore, MD USA
[14] Univ Toronto, Inst Hlth Policy Management & Evaluat, 825 Coxwell Ave,Suite C420A, Toronto, ON M4C 3E7, Canada
[15] Michael Garron Hosp Toronto East Hlth Network, 825 Coxwell Ave,Suite C420A, Toronto, ON M4C 3E7, Canada
关键词
Advance care planning; advance directives; primary care; dementia; quality improvement; END-OF-LIFE; COGNITIVE IMPAIRMENT; PRAGMATIC TRIAL; SERIOUS ILLNESS; DIRECTIVES; COMMUNICATION; COMPLETION; DEMENTIA; DESIGN; DEATH;
D O I
10.1016/j.jpainsymman.2023.04.014
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background. Few advance care planning (ACP) interventions have been scaled in primary care.Problem. Best practices for delivering ACP at scale in primary care do not exist and prior efforts have excluded older adults with Alzheimer's Disease and Related Dementias (ADRD).Intervention. SHARING Choices (NCT#04819191) is a multicomponent cluster-randomized pragmatic trial conducted at 55 primary care practices from two care delivery systems in the Mid-Atlantic region of the U.S. We describe the process of imple-menting SHARING Choices within 19 practices randomized to the intervention, summarize fidelity to planned implementation, and discuss lessons learned. Outcomes. Embedding SHARING Choices involved engagement with organizational and clinic-level partners. Of 23,220 can-didate patients, 17,931 outreach attempts by phone (77.9%) and the patient portal (22.1%) were made by ACP facilitators and 1215 conversations occurred. Most conversations (94.8%) were less than 45 minutes duration. Just 13.1% of ACP conversations included family. Patients with ADRD comprised a small proportion of patients who engaged in ACP. Implementation adapta-tions included transitioning to remote modalities, aligning ACP outreach with the Medicare Annual Wellness Visit, accommo-dating primary care practice flexibility.Lessons learned. Study findings reinforce the value of adaptable study design; co-designing workflow adaptations with prac-tice staff; adapting implementation processes to fit the unique needs of two health systems; and modifying efforts to meet health system goals and priorities. J Pain Symptom Manage 2023;66:e255-e264.& COPY; 2023 American Academy of Hospice and Palliative Med-icine. Published by Elsevier Inc. All rights reserved.
引用
收藏
页码:255 / 264
页数:10
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