Perceived loss of support to community caregivers during the COVID-19 pandemic in the United States

被引:2
作者
Kennedy, David P. [1 ]
Friedman, Esther M. [2 ]
Kirkegaard, Allison [1 ]
Edgington, Sarah [3 ]
Shih, Regina [4 ]
机构
[1] RAND Corp, Dept Behav & Policy Sci, Santa Monica, CA 90401 USA
[2] Univ Michigan, Inst Social Res, Ann Arbor, MI USA
[3] RAND Corp, Res Programming Grp, Santa Monica, CA USA
[4] Emory Univ, Rollins Sch Publ Hlth, Atlanta, GA USA
基金
美国国家卫生研究院;
关键词
community caregivers; COVID-19; social networks; social support; social work; SOCIAL NETWORK INTERVENTION; PERSONAL NETWORK; RESPONDENT BURDEN; HEALTH; CARE; DEMENTIA;
D O I
10.1002/jcop.23107
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Coronavirus disease (COVID-19) had a negative impact on the health and well-being of community caregivers. Few studies examine the pandemic's negative impact on the availability of social networks of caregivers. This article uses data collected during COVID-19 before vaccination to examine caregivers' reports of perceived lost and reduced network support. We assessed the personal networks of a nationally representative sample of 2214 community caregivers in the United States. We analyzed associations between caregiving factors and caregivers' perceptions of lost and reduced network support. Changes in care recipient living circumstances during COVID-19, longer-term caregiving, care recipient hearing/vision/mobility problems, caregiver travel/socializing restrictions, caregiver race/ethnicity, caregiver income, caregiver age, network connectivity, family relationships, and network members' age were associated with perceived lost/reduced support during the pandemic. Findings provide insights for the development of social network interventions to support caregivers and help them cultivate support networks resilient to public health crises.
引用
收藏
页码:475 / 497
页数:23
相关论文
共 73 条
[1]   2023 Alzheimer's disease facts and figures [J].
不详 .
ALZHEIMERS & DEMENTIA, 2023, 19 (04) :1598-1695
[2]  
[Anonymous], 2010, Social Networks and Health, DOI DOI 10.1093/ACPROF:OSO/9780195301014.001.0001
[3]   Caregiving in Quarantine: Evaluating the Impact of the Covid-19 Pandemic on Adult Child Informal Caregivers of a Parent [J].
Archer, Jesse ;
Reiboldt, Wendy ;
Claver, Maria ;
Fay, John .
GERONTOLOGY AND GERIATRIC MEDICINE, 2021, 7
[4]   Unmet Expectations in Alzheimer's Family Caregiving: Interactional Characteristics Associated With Perceived Under-Contribution [J].
Ashida, Sato ;
Marcum, Christopher Steven ;
Koehly, Laura M. .
GERONTOLOGIST, 2018, 58 (02) :E46-E55
[5]   Family Caregiving During the COVID-19 Pandemic [J].
Beach, Scott R. ;
Schulz, Richard ;
Donovan, Heidi ;
Rosland, Ann-Marie .
GERONTOLOGIST, 2021, 61 (05) :650-660
[6]   How to Generate Personal Networks: Issues and Tools for a Sociological Perspective [J].
Bidart, Claire ;
Charbonneau, Johanne .
FIELD METHODS, 2011, 23 (03) :266-286
[7]   Understanding social network support, composition, and structure among cancer caregivers [J].
Bouchard, Elizabeth G. ;
Prince, Mark A. ;
McCarty, Christopher ;
Vincent, Paula C. ;
Patel, Hital ;
LaValley, Susan A. ;
Collins, R. Lorraine ;
Sahler, Olle Jane Z. ;
Krenz, Till ;
Kelly, Kara M. .
PSYCHO-ONCOLOGY, 2023, 32 (03) :408-417
[8]   "You Feel Very Isolated": Effects of COVID-19 Pandemic on Caregiver Social Connections [J].
Bristol, Alycia A. ;
Mata, Aaron C. ;
Mickens, Melody ;
Dassel, Kara B. ;
Ellington, Lee ;
Scammon, Debra ;
Thompson, Amber ;
Towsley, Gail L. ;
Utz, Rebecca L. ;
Terrill, Alexandra L. .
GERONTOLOGY AND GERIATRIC MEDICINE, 2021, 7
[9]   COVID-19-Related Changes in Assistance Networks for US Older Adults With and Without Dementia [J].
Brown, Monique J. ;
Wang, Haowei ;
Lin, I-Fen ;
Gan, Daniel ;
Oyeyemi, Deborah ;
Manning, Mark ;
Freedman, Vicki A. .
JOURNALS OF GERONTOLOGY SERIES B-PSYCHOLOGICAL SCIENCES AND SOCIAL SCIENCES, 2023, 78 :S81-S90
[10]   Structural holes and good ideas [J].
Burt, RS .
AMERICAN JOURNAL OF SOCIOLOGY, 2004, 110 (02) :349-399