Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries: A Systematic Review

被引：0

作者：

Gillette, Emma ^{[1
]}

Nyandiko, Winstone ^{[2
,3
]}

Chory, Ashley ^{[1
]}

Scanlon, Michael ^{[4
]}

Aluoch, Josephine ^{[3
]}

Choudhury, Nandini ^{[1
]}

Lagat, Daniel ^{[3
]}

Ashimosi, Celestine ^{[3
]}

Biegon, Whitney ^{[3
]}

Munyoro, Dennis ^{[3
]}

Lidweye, Janet ^{[3
]}

Nyagaya, Jack ^{[3
]}

Wilets, Ilene ^{[1
]}

Delong, Allison ^{[5
]}

Kantor, Rami ^{[5
]}

Vreeman, Rachel ^{[1
,6
]}

Naanyu, Violet ^{[2
,3
]}

机构：

[1] Icahn Sch Med Mt Sinai, Dept Global Hlth & Hlth Syst Design, New York, NY USA

[2] Moi Univ, Coll Hlth Sci, Eldoret, Kenya

[3] Acad Model Providing Access Healthcare AMPATH, Eldoret, Kenya

[4] Indiana Univ, Ctr Global Hlth, Indianapolis, IN USA

[5] Brown Univ, Providence, RI USA

[6] Icahn Sch Med Mt Sinai, Arnhold Inst Global Hlth, 1216 Fifth Ave,Fifth Floor,Room 556, New York, NY 10029 USA

来源：

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS | 2023年 / 18卷 / 05期

基金：

美国国家卫生研究院;

关键词：

HIV; children; adolescents; research ethics; Africa; HEALTH RESEARCH; CONSENT; PERSPECTIVES; PERCEPTIONS; STRATEGIES; GUIDELINES; HIV/AIDS; STIGMA; TRIALS; LEGAL;

D O I：

10.1177/15562646231208991

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research.

引用

页码：346 / 362

页数：17

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