"Can you hear me OK?": Caregivers of Children With Medical Complexity and Their Perspectives of Virtual Care During COVID-19

被引:2
作者
Fong, Vanessa C. [1 ]
Baumbusch, Jennifer [1 ,2 ]
Khan, Koushambhi [1 ]
机构
[1] Univ British Columbia, Sch Nursing, Vancouver, BC, Canada
[2] Univ British Columbia, Sch Nursing, T201-2211 Wesbrook Mall, Vancouver, BC V6T 2B5, Canada
基金
加拿大健康研究院;
关键词
Virtual care; complex care; COVID-19; qualitative; health care services; HEALTH-CARE; TELEHEALTH; INTERVENTION; NEEDS; TELEMEDICINE;
D O I
10.1016/j.pedhc.2023.08.008
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction: The rapid and widespread shift to virtual care dur-ing COVID-19 created new opportunities and unique challenges for families of children with medical complexity (CMC). However, few studies have examined perceptions of virtual care during the pandemic in this population. Method: To address this gap, the current study used a qualitative approach and semistructured interviews via Zoom to explore par-ent perspectives of virtual care. Purposive sampling was used to recruit 30 parents residing with their CMC (aged 0-18 years) in British Columbia, Canada. Results: The findings identified from the data included (1) advan-tages and opportunities, (2) concerns and challenges, and (3) parent choice and preference. Discussion: Our findings indicate the need for healthcare profes-sionals to receive training to use virtual care in their practice effec-tively. In addition, policies about standards for virtual care and ensuring families have access to the necessary technology will help reduce barriers and improve equity and inclusion for this popula-tion. J Pediatr Health Care. (2024) 38, 30-38
引用
收藏
页码:30 / 38
页数:9
相关论文
共 35 条
  • [1] The unintended consequences of COVID-19 public health measures on health care for children with medical complexity
    Baumbusch, Jennifer
    Lloyd, Jennifer E., V
    Lamden-Bennett, Shawna R.
    Ou, Christine
    [J]. CHILD CARE HEALTH AND DEVELOPMENT, 2022, 48 (06) : 970 - 978
  • [2] A telehealth nursing intervention reduces hospitalizations in children with complex health conditions
    Cady, Rhonda
    Finkelstein, Stanley
    Kelly, Anne
    [J]. JOURNAL OF TELEMEDICINE AND TELECARE, 2009, 15 (06) : 317 - 320
  • [3] Meeting the Needs of Children with Medical Complexity Using a Telehealth Advanced Practice Registered Nurse Care Coordination Model
    Cady, Rhonda G.
    Erickson, Mary
    Lunos, Scott
    Finkelstein, Stanley M.
    Looman, Wendy
    Celebreeze, Margaret
    Garwick, Ann
    [J]. MATERNAL AND CHILD HEALTH JOURNAL, 2015, 19 (07) : 1497 - 1506
  • [4] Pediatric Teleheath: Opportunities Created by the COVID-19 and Suggestions to Sustain Its Use to Support Families of Children with Disabilities
    Camden, Chantal
    Silva, Mindy
    [J]. PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS, 2021, 41 (01) : 1 - 17
  • [5] Diversity of practices in telerehabilitation for children with disabilities and effective intervention characteristics: results from a systematic review
    Camden, Chantal
    Pratte, Gabrielle
    Fallon, Florence
    Couture, Melanie
    Berbari, Jade
    Tousignant, Michel
    [J]. DISABILITY AND REHABILITATION, 2020, 42 (24) : 3424 - 3436
  • [6] Canadian Institute for Health Information, 2020, Children and youth with medical complexity in Canada
  • [7] Canadian Institute for Health Information, 2020, Provincial governments guidance for family presence and visitor
  • [8] Evaluation of the effects of the COVID-19 pandemic on children with cerebral palsy, caregivers' quality of life, and caregivers' fear of COVID-19 with telemedicine
    Cankurtaran, Damla
    Tezel, Nihal
    Yildiz, Sadik Yigit
    Celik, Gulnur
    Unlu Akyuz, Ece
    [J]. IRISH JOURNAL OF MEDICAL SCIENCE, 2021, 190 (04) : 1473 - 1480
  • [9] Clawson Betsy, 2008, Pediatr Nurs, V34, P213
  • [10] Overcoming Barriers, 1 Child at a Time: An Innovative Approach to Community-Based Pediatric Palliative Care Services
    Cormack, Carrie
    Phillips, Shannon M.
    McDaniel, Christina
    [J]. JOURNAL OF HOSPICE & PALLIATIVE NURSING, 2016, 18 (05) : 459 - 463