Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment

被引:4
作者
Mazzola, Amanda [1 ]
Vaughn, Lisa M. [1 ,2 ]
Chelvakumar, Gayathri [4 ,5 ]
Conard, Lee Ann E. [3 ,6 ]
Fortenberry, Dennis J. [7 ]
Voss, Raina V. [8 ]
Lipstein, Ellen A. [1 ,3 ]
机构
[1] Cincinnati Childrens Hosp Med Ctr, James M Anderson Ctr Hlth Syst Excellence, 3333 Burnet Ave,MLC 7014, Cincinnati, OH 45229 USA
[2] Cincinnati Childrens Hosp Med Ctr, Div Emergency Med, Cincinnati, OH 45229 USA
[3] Univ Cincinnati, Coll Med, Dept Pediat, Cincinnati, OH USA
[4] Ohio State Univ, Nationwide Childrens Hosp, Coll Med, Div Adolescent Med, Columbus, OH USA
[5] Ohio State Univ, Nationwide Childrens Hosp, Coll Med, Dept Pediat, Columbus, OH USA
[6] Cincinnati Childrens Hosp Med Ctr, Div Adolescent & Transit Med, Cincinnati, OH 45229 USA
[7] Indiana Univ Sch Med, Div Adolescent Med, Indianapolis, IN USA
[8] Northwestern Univ, Feinberg Sch Med, Ann & Robert H Lurie Childrens Hosp Chicago, Chicago, IL USA
关键词
Shared decision-making; Group level assessment; Transgender; HEALTH; PERCEPTIONS;
D O I
10.1016/j.jadohealth.2022.10.022
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Purpose: Due to the intertwining of medical and social decision-making, new approaches to shared decision-making are likely needed for supporting decisions related to the care of trans -gender and gender-diverse (TGD) adolescents. Prior to developing decision support interventions for TGD youth, a decision support needs assessment must be completed.Methods: Self-identified TGD youth, family members of TGD youth, clinicians caring for this popu-lation, and community advocates participated in one of six group level assessments (GLAs). GLA is a structured, participatory qualitative method that engages diverse groups of stakeholders in generating and evaluating ideas on the topic of interest. Upon completion of all GLAs, a survey was developed and distributed to GLA participants inviting them to rank ideas generated during the GLAs.Results: Six major themes emerged from the GLAs regarding decision support needs, including: improving healthcare provider skills and education, increasing access to support outside the healthcare system, strengthening community and societal support, developing special information resources, supporting youth in leading decision-making about transition, and modifying the healthcare system. In the follow-up survey, improving healthcare provider skills and education was the most commonly chosen top priority.Discussion: Participants identified decision support needs for TGD youth and their families that were mostly distinct from traditional decision support approaches. Participants' focus on the need to improve healthcare provider skills and education provides an opportunity to couple gender -focused education with shared decision-making skills, an approach that may be more sustain-able than tools for specific decisions.(c) 2022 Society for Adolescent Health and Medicine. All rights reserved.
引用
收藏
页码:452 / 459
页数:8
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