The implementation of the 2017 national policy on patient-reported outcomes in Denmark: An overview of developments after six years

被引:9
作者
Egholm, Cecilie Lindstrom [1 ,2 ,6 ]
Jensen, Sanne [3 ]
Wandel, Annette [4 ]
Horder, Mogens [5 ]
机构
[1] Odense Univ Hosp, Danish Knowledge Ctr Rehabil & Palliat Care, REHPA, Nyborg, Denmark
[2] Univ Southern Denmark, Dept Clin Res, Odense, Denmark
[3] Natl Hlth Data Author, Copenhagen, Denmark
[4] Danish Patients, Copenhagen, Denmark
[5] Univ Southern Denmark, Fac Hlth, Unit User Perspect, Odense, Denmark
[6] Vestergade 17, DK-5800 Nyborg, Denmark
关键词
Patient-centred approach; Patient reported outcomes; Denmark; Quality improvement; Health policy; Implementation;
D O I
10.1016/j.healthpol.2023.104755
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Driven by the potential values of using more patient-centred approaches in health care, the Danish government, regions and municipalities have agreed to introduce a standardised use of patient-reported outcomes (PRO) in all healthcare sectors in Denmark. Expecting benefits in particular at the individual patient level, the work to implement the national PRO policy is carried out under the auspices of the Ministry of Health. This highly systematic and comprehensive work elevates the development of PRO to a national level and centres around three main elements: development and feasibility tests of standardised PRO instruments within specific clinical areas, the development and implementation of a PRO instrument repository and a national IT infrastructure for the sharing of data across healthcare sectors. The paper describes these elements together with reports on the current state of implementation after six years of activities. PRO instruments have been developed and tested within eight clinical areas and - as intended - they show promising value for patients as well as healthcare professionals with respect to individual patient care. It has taken time for the supporting IT infrastructure to become fully operational in practice and, likewise, the strengthening of the implementation in and across healthcare sectors has required - and continues to require - considerable efforts from all stakeholders.
引用
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页数:7
相关论文
共 32 条
[1]  
Aaronson N., 2015, User's Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice
[2]   Harnessing the patient voice in real-world evidence: the essential role of patient-reported outcomes [J].
Calvert, Melanie J. ;
O'Connor, Daniel J. ;
Basch, Ethan M. .
NATURE REVIEWS DRUG DISCOVERY, 2019, 18 (10) :731-732
[3]  
Danish Health Data Authority, 2019, DAN NAT WORK PAT REP
[4]  
De Vet HCW, 2011, MEAS MED PRACT GUID, P1
[5]  
Desomer A., 2018, Use of patient-reported outcome and experience measures in patient care and policy. Health Services Research (HSR)
[6]   The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: A systematic review of reviews [J].
Foster A. ;
Croot L. ;
Brazier J. ;
Harris J. ;
O’cathain A. .
Journal of Patient-Reported Outcomes, 2 (1)
[7]   Routine provision of feedback from patient-reported outcome measurements to healthcare providers and patients in clinical practice [J].
Gibbons, Chris ;
Porter, Ian ;
Goncalves-Bradley, Daniela C. ;
Stoilov, Stanimir ;
Ricci-Cabello, Ignacio ;
Tsangaris, Elena ;
Gangannagaripalli, Jaheeda ;
Davey, Antoinette ;
Gibbons, Elizabeth J. ;
Kotzeva, Anna ;
Evans, Jonathan ;
van der Wees, Philip J. ;
Kontopantelis, Evangelos ;
Greenhalgh, Joanne ;
Bower, Peter ;
Alonso, Jordi ;
Valderas, Jose M. .
COCHRANE DATABASE OF SYSTEMATIC REVIEWS, 2021, (10)
[8]   How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? a realist synthesis [J].
Greenhalgh J. ;
Gooding K. ;
Gibbons E. ;
Dalkin S. ;
Wright J. ;
Valderas J. ;
Black N. .
Journal of Patient-Reported Outcomes, 2 (1)
[9]   How do aggregated patient-reported outcome measures data stimulate health care improvement? A realist synthesis [J].
Greenhalgh, Joanne ;
Dalkin, Sonia ;
Gibbons, Elizabeth ;
Wright, Judy ;
Valderas, Jose Maria ;
Meads, David ;
Black, Nick .
JOURNAL OF HEALTH SERVICES RESEARCH & POLICY, 2018, 23 (01) :57-65
[10]   A pragmatic approach for implementation of value-based healthcare in Amsterdam UMC, the Netherlands [J].
Heijsters, Florence A. C. J. ;
van Breda, Fenna G. F. ;
van Nassau, Femke ;
van der Steen, Marije K. J. ;
ter Wee, Piet M. ;
Mullender, Margriet G. ;
de Bruijne, Martine C. .
BMC HEALTH SERVICES RESEARCH, 2022, 22 (01)