The Experience of Living through the Transition from Adolescence to Adulthood for Young People with Cerebral Palsy

被引:7
作者
Boyle, Paul [1 ,5 ]
Galvin, Kathleen T. [2 ]
Vuoskoski, Pirjo [3 ]
Stew, Graham [4 ]
机构
[1] Univ Brighton, Sch Sport & Hlth Sci, Occupat Therapy, Eastbourne, England
[2] Univ Brighton, Sch Sport & Hlth Sci, Brighton, England
[3] Univ Jyvaskyla, Fac Sport & Hlth Sci, Jyvaskyla, Finland
[4] Univ Brighton, Sch Hlth Sci, Eastbourne, England
[5] Univ Brighton, Sch Sport & Hlth Sci, Occupat Therapy, Robert Dodd Bldg,49 Darley Rd, Eastbourne BN20 7UR, England
关键词
Disability; growing up; hermeneutics; phenomenology; young people; ADAPTIVE SEATING INTERVENTIONS; HEALTH-CARE TRANSITION; CHILDREN; IMPACT; YOUTH; NEEDS; PHENOMENOLOGY; DISABILITIES; SURVIVAL; PARENTS;
D O I
10.1080/07380577.2023.2211669
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
This study explored the lived experience of transition from adolescence to adulthood for young people with cerebral palsy to inform occupational therapy practitioners as to what might promote positive life opportunities. A phenomenological methodology was used with six participants, aged 18 to 25 years with cerebral palsy. The findings are presented in the form of hermeneutic stories and three themes: The storm of uncertainty; time, space and the body, Capsizing in a world of others and, Securing anchorage; being heard and understood. Recommendations include service integration across health, social care and education based on partnership and provision of coordinators.
引用
收藏
页码:72 / 91
页数:20
相关论文
共 53 条
[1]  
Adams Catherine A., 2010, Indo-Pac. j. phenomenol. (Online), V10, P1
[2]  
[Anonymous], 2012, LONG TERM CONDITIONS, V3rd
[3]  
[Anonymous], 2014, CHILDREN FAMILIES AC
[4]  
[Anonymous], 2001, VAL PEOPL NEW STRAT
[5]  
Arnett Jeffrey Jensen., 2015, Emerging Adulthood: The Winding Road from the Late Teens through the Twenties, V2nd
[6]   "Thrust into adulthood": Transition experiences of young adults with cerebral palsy [J].
Bagatell, Nancy ;
Chan, Dara ;
Rauch, Kimberly Karrat ;
Thorpe, Deborah .
DISABILITY AND HEALTH JOURNAL, 2017, 10 (01) :80-86
[7]   Living in transition - experiences of health and well-being and the needs of adolescents with cerebral palsy [J].
Bjorquist, E. ;
Nordmark, E. ;
Hallstrom, I. .
CHILD CARE HEALTH AND DEVELOPMENT, 2015, 41 (02) :258-265
[8]  
Blacher J., 2010, Advances in Mental Health and Learning Disabilities, V4, P3, DOI [DOI 10.5042/AMHLD.2010.0052, 10.5042/amhld.2010.0052]
[9]  
Boyle P., 2016, REH INT WORLD C
[10]   Transitioning from adolescence to adulthood for young people living with cerebral palsy: a meta-ethnography [J].
Boyle, Paul ;
Vuoskoski, Pirjo ;
Stew, Graham ;
Galvin, Kathleen T. .
DISABILITY & SOCIETY, 2022, 37 (02) :231-253