The Good Life: visualizing the complexity of supported living for people with disability

被引:0
|
作者
Hibberd, Georgina [1 ]
Lorber-Kasunic, Jacqueline [1 ]
Sweetapple, Kate [1 ]
机构
[1] Univ Technol Sydney, Sydney, NSW, Australia
来源
2023 IEEE WORKSHOP ON VISUALIZATION FOR SOCIAL GOOD, VIS4GOOD | 2023年
关键词
Visualization; disability; care; decision-making; DIGNITY; RISK;
D O I
10.1109/VIS4Good60218.2023.00008
中图分类号
TP39 [计算机的应用];
学科分类号
081203 ; 0835 ;
摘要
This paper outlines the development of an interactive visualization tool, 'A Good Life,' which emerged out of a collaborative project between design researchers and practitioners from the University of Technology Sydney and Northcott, an Australian disability services organisation. Northcott provides supported accommodation services for people living in group homes (up to 6 people) with moderate to severe intellectual and physical disabilities requiring 24-hour support. Supported accommodation provides housing for marginalised and vulnerable people, often with limited resources. Working in this environment can be challenging but also rewarding. However, residents face even greater challenges because decisions made by others primarily determine their quality of life. These decisionmakers can include family members or long-term support workers who have a deep understanding of the resident, allied health professionals who interact with the resident regularly but have a limited perspective, and government officials who lack a personal relationship with the resident but formulate policies that consequently have a profound effect on them. A significant issue for people with disability is the lack of visibility or understanding regarding how decisions affect their quality of life. To address this issue, the tool visualizes how decisions can restrict or enhance opportunities for people with disabilities. Additionally, it seeks to improve levels of communication by better expressing the will and preferences of the residents.
引用
收藏
页码:6 / 10
页数:5
相关论文
共 50 条
  • [21] Disability and its influence in nutritional assessment tools in elderly people living in nursing homes
    Lardies Sanchez, Beatriz
    Sanz Paris, Alejandro
    Perez Nogueras, Javier
    Serrano Oliver, Antonio
    Torres Anoro, Ma Elena
    Ballesteros Pomar, Ma Dolores
    NUTRICION HOSPITALARIA, 2017, 34 (05) : 84 - 92
  • [22] Faith, Spirituality, and Living the Good Life With Quadriplegia
    Clifton, Shane
    Llewellyn, Gwynnyth
    Shakespeare, Tom
    PSYCHOLOGY OF RELIGION AND SPIRITUALITY, 2020, 12 (03) : 356 - 365
  • [23] Predictors of employment and disability among people living with HIV/AIDS
    Burns, Shaun Michael
    Young, Lydia R. L.
    Maniss, Suzanne
    REHABILITATION PSYCHOLOGY, 2006, 51 (02) : 127 - 134
  • [24] RETRACTED: Barriers and enablers to the implementation of healthy lifestyle interventions for people with disability living in supported accommodation: A systematic review using the consolidated framework for implementation research (Retracted Article)
    Hatzikiriakidis, Kostas
    Ayton, Darshini
    O'Connor, Amanda
    Callaway, Libby
    Carmody, Sarah
    Skouteris, Helen
    Green, Rachael
    DISABILITY AND HEALTH JOURNAL, 2023, 16 (02)
  • [25] Yearly transitions of disability profiles in older people living at home
    Raiche, Michel
    Hebert, Rejean
    Dubois, Marie-France
    Gueye, N'Deye Rokhaya
    Dubuc, Nicole
    ARCHIVES OF GERONTOLOGY AND GERIATRICS, 2012, 55 (02) : 399 - 405
  • [26] Life memories and the ability to act: the meaning of autonomy and participation for older people when living with chronic illness
    Hedman, Maria
    Poder, Ulrika
    Mamhidir, Anna-Greta
    Nilsson, Annika
    Kristofferzon, Marja-Leena
    Haggstrom, Elisabeth
    SCANDINAVIAN JOURNAL OF CARING SCIENCES, 2015, 29 (04) : 824 - 833
  • [27] Social Disability as Disaster: Case Studies of the COVID-19 Pandemic on People Living with Disabilities
    Connon, Irena L. C.
    Crampton, Alexandra
    Dyer, Christopher
    Hu, Rita Xiaochen
    SOCIAL SCIENCES-BASEL, 2024, 13 (04):
  • [28] LENs for Analyzing the Quality of Life of People with Intellectual Disability
    Fraile-Parra, Diego
    Costa, Vicent
    Dellunde, Pilar
    NEURAL-SYMBOLIC LEARNING AND REASONING, PT II, NESY 2024, 2024, 14980 : 165 - 174
  • [29] Family Quality of Life of People with Disability: a Comparative Analyses
    Cordoba-Andrade, Leonor
    Gomez-Benito, Juana
    Angel Verdugo-Alonso, Miguel
    UNIVERSITAS PSYCHOLOGICA, 2008, 7 (02) : 369 - 383
  • [30] Validation of the Late-Life Function and Disability Instrument in People Living with Chronic Obstructive Pulmonary Disease A Clinical Trial
    Blondeel, Astrid
    Demeyer, Heleen
    Alcaraz-Serrano, Victoria
    Buttery, Sara C.
    Buekers, Joren
    Chynkiamis, Nikolaos
    Josa-Cullere, Alicia
    Delgado-Ortiz, Laura
    Frei, Anja
    Glorie, Lies
    Gimeno-Santos, Elena
    Hopkinson, Nicholas S.
    Hume, Emily
    Jansen, Carl-Philipp
    Kirsten, Anne
    Koch, Sarah
    Megaritis, Dimitrios
    Mellaerts, Paulien
    Puhan, Milo A.
    Rochester, Lynn
    Vogiatzis, Ioannis
    Watz, Henrik
    Wuyts, Marieke
    Garcia-Aymerich, Judith
    Troosters, Thierry
    ANNALS OF THE AMERICAN THORACIC SOCIETY, 2025, 22 (01) : 72 - 82