How compassionate is your neighborhood? Results of a cross-sectional survey on neighborhood participation regarding serious illness, death, and loss

被引:1
作者
D'Eer, Louise [1 ,2 ,3 ]
Chambaere, Kenneth [1 ,2 ,3 ]
van den Block, Lieve [1 ,2 ,3 ]
Dury, Sarah [3 ,4 ]
Sallnow, Libby [1 ,2 ,5 ,6 ]
Deliens, Luc [1 ,2 ,3 ]
Smets, Tinne [1 ,2 ,3 ]
Cohen, Joachim [1 ,2 ,3 ]
机构
[1] Vrije Univ Brussel, End of life Care Res Grp, Brussels, Belgium
[2] Univ Ghent, Brussels, Belgium
[3] Vrije Univ Brussel VUB, Compassionate Communities Ctr Expertise COCO, Brussels, Belgium
[4] Vrije Univ Brussel, Soc & Ageing Res Lab, Brussels, Belgium
[5] St Christophers Hosp, London, England
[6] UCL, Marie Curie Palliat Care Res Grp, London, England
关键词
Public health; palliative care; compassionate communities; neighborhood participation; informal participation; OF-LIFE CARE; COMMUNITY;
D O I
10.1080/07481187.2023.2283449
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
We conducted a cross-sectional survey measuring the extent and nature of neighborhood participation regarding serious illness, death and loss and the factors that are associated with it. We distributed the survey to 2324 adult citizens in two neighborhoods in Flanders, Belgium, to which 714 citizens responded (response rate 30.7%). Of the respondents, 42.4% participated in at least one action in their neighborhood around serious illness, death, or loss, for 30.8% of them this participation was sporadic. Most of the respondents participated by helping neighbors (32.4%) or by volunteering (10.3%). We found a positive association between perceived neighborhood social cohesion (beta = 0.100; CI = 0.003-0.040), previous experiences with serious illness, death, and loss (beta = 0.158; CI = 0.204-0.586) and neighborhood participation around serious illness, death and loss. Future research should investigate strategies on how to move from death literacy developed through illness, caregiving and bereavement experiences to neighborhood participation around these topics.
引用
收藏
页码:810 / 819
页数:10
相关论文
共 32 条
[11]  
Christensen T., 2005, Public productivity and management review, V28, P487, DOI [10.1080/15309576.2005.11051848, DOI 10.2307/3381308, DOI 10.1080/15309576.2005.11051848]
[12]   Hospice Palliative Care Volunteers: A Review of Commonly Encountered Stressors, How They Cope With them, and Implications for Volunteer Training/Management [J].
Claxton-Oldfield, Stephen .
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2016, 33 (02) :201-204
[13]  
Crowley D., Summary of youth engagement strategy
[14]   Civic engagement in serious illness, death, and loss: A systematic mixed-methods review [J].
D'Eer, Louise ;
Quintiens, Bert ;
Van den Block, Lieve ;
Dury, Sarah ;
Deliens, Luc ;
Chambaere, Kennneth ;
Smets, Tinne ;
Cohen, Joachim .
PALLIATIVE MEDICINE, 2022, 36 (04) :625-651
[15]   Explaining civic engagement: The role of neighborhood ties, place attachment, and civic responsibility [J].
Dang, Lisa ;
Seemann, Ann-Kathrin ;
Lindenmeier, Jorg ;
Saliterer, Iris .
JOURNAL OF COMMUNITY PSYCHOLOGY, 2022, 50 (03) :1736-1755
[16]   Engagement of specialized palliative care services with the general public: A population-level survey in three European countries [J].
De Vleminck, Aline ;
Paul, Sally ;
Reinius, Maria ;
Sallnow, Libby ;
Tishelman, Carol ;
Cohen, Joachim .
PALLIATIVE MEDICINE, 2022, 36 (05) :878-888
[17]  
Diller E.C., 2001, Citizens in service: The challenge of delivering civic engagement Training to national service programs
[18]   Providing end-of-life care in disability community living services: An organizational capacity-building model using a public health approach [J].
Grindrod, Andrea ;
Rumbold, Bruce .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2017, 30 (06) :1125-1137
[19]  
HODDINOTT SN, 1986, CAN FAM PHYSICIAN, V2368
[20]   Compassionate communities: end-of-life care as everyone's responsibility [J].
Kellehear, Allan .
QJM-AN INTERNATIONAL JOURNAL OF MEDICINE, 2013, 106 (12) :1071-1075