Effects of Interdisciplinary Therapy in A Patient with Severe Dystonic Cerebral Palsy: a 12-Year Follow-up Case Report

Dystonic cerebral palsy (CP) presents significant challenges due to its complex movement disorders and associated complications. This case report details a unique 12-year longitudinal observation (from birth to 12 years of age) of a patient with severe dystonic CP, highlighting the benefits of an interdisciplinary, structured therapeutic approach. The patient exhibited severe dystonia, motor impairment, and a high risk of musculoskeletal and systemic complications. Diagnosis and treatment were guided by the WHO's International Classification of Functioning, Disability, and Health (ICF) framework, incorporating the "F-words" concept and evidence-based recommendations. An interdisciplinary team collaborated to provide comprehensive, long-term care, including a neurologist, orthopaedist, neurosurgeon, physiotherapist, orthoptist, neuro-logopedist, alternative communication specialist, and psychologist. Over the whole course of treatment, the patient maintained good body structure and function, with no significant pain or respiratory, gastrointestinal, or urinary complications. While the mild range of motion restrictions were observed, the patient achieved independent mobility using assistive technologies and actively participated in school, sports, family activities, and social interactions. However, dystonic movements remained an unresolved challenge. This case underscores the potential of a structured, interdisciplinary approach to enhance the quality of life for individuals with severe dystonic CP. This approach significantly improved the patients' and their families' quality of life across all ICF domains. Our findings highlight the need for national healthcare systems to adopt comprehensive rehabilitation strategies to improve functional outcomes and promote independence in children with CP.