Experiences and perspectives during the transition from paediatric to adult care in type 1 diabetes mellitus: systematic review of qualitative studies

When Type 1 diabetes mellitus (T1DM) patients transition from paediatric to adult healthcare providers, the risk of deteriorating health outcomes rises. The aim of this study is to integrate the experiences and perspectives regarding interventions for the management of T1DM during the transition from paediatric to adult care, from a patient and professional perspective. A systematic review was conducted with a framework analysis guided by the Cochrane Qualitative and Implementation Methods Group approach. Three online databases (Medline, Embase and Web of Science) were searched. We included qualitative articles that were available in English or Spanish. Twenty-five references met the inclusion criteria of the study and were included. Four main themes were identified: (a) teen experience, (b) acceptability, (c) implementation considerations and (d) equity.Conclusion: During the care transition, adolescents with T1DM undergo a critical phase of increasing care independence in which fostering autonomy and strengthening continuity of care may achieve a more satisfying care.What is Known:center dot Transitions from pediatric to adult healthcare providers are associated with an increased risk of adverse health outcomes.What is New:center dot This study highlights that enhancing the transition process requires improved information transfer, reinforced continuity of care, and effective coordination among healthcare providers.