Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning

被引：1

作者：

Walsh, Casey A. ^{[1
]}

Miller, Sarah J. ^{[2
]}

Smith, Cardinale B. ^{[3
]}

Prigerson, Holly G. ^{[4
]}

Mcfarland, Daniel

Yarborough, Sarah ^{[1
]}

de los Santos, Claudia

Thomas, Robert ^{[5
]}

Czaja, Sara J. ^{[6
]}

Roychoudhury, Arindam

Chapman-Davis, Eloise ^{[7
]}

Lachs, Mark ^{[8
,9
]}

Shen, Megan J. ^{[1
]}

机构：

[1] Fred Hutchinson Canc Ctr, Clin Res Div, 1100 Fairview Ave N,Mail Stop D5-290, Seattle, WA 98109 USA

[2] Icahn Sch Med Mt Sinai, Dept Populat Hlth Sci & Policy, New York, NY USA

[3] Icahn Sch Med Mt Sinai, Div Hematol & Med Oncol, Div Geriatr & Palliat Med, New York, NY USA

[4] Weill Cornell Med Coll, Cornell Ctr Res End Of Life Care, Dept Med, New York, NY USA

[5] Icahn Sch Med Mt Sinai, Div Gen Internal Med, New York, NY USA

[6] Weill Cornell Med, Ctr Aging & Behav Res, Div Geriatr & Palliat Med, New York, NY USA

[7] Weill Cornell Med Coll, Div Obstet & Gynecol, New York, NY USA

[8] Weill Cornell Med Coll, Dept Med, New York, NY USA

[9] New York Presbyterian Hlth Care Syst, Geriatr & Palliat Med, New York, NY USA

来源：

PEC INNOVATION | 2024年 / 4卷

基金：

美国国家卫生研究院;

关键词：

Cancer; Patients; Caregivers; Advance care planning; Advance directives; SHARED DECISION-MAKING; CANCER-PATIENTS; OF-LIFE; END; PHYSICIANS; FAMILIES; AUTONOMY; MODEL;

D O I：

10.1016/j.pecinn.2023.100245

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Objectives: Most prior advance care planning (ACP) interventions lack integration of the social context of patients' ACP process, which patients indicate is critically important. The current study developed the Planning Advance Care Together (PACT) website to foster inclusion of loved ones in the ACP process. Methods: To provide feedback about the PACT website, patients with advanced cancer (N = 11), their caregivers (N = 11), and experts (N = 10) participated in semi-structured interviews. Patients and caregivers also completed standardized ratings of acceptability and usability. Results: Overall, patient (n = 11) and caregiver (n = 11) ratings of acceptability and usability of the website exceeded benchmark cut-offs (>= 24 on the Acceptability E-Scale and >= 68 on the System Usability Scale). Patients, caregivers, and experts liked the topic of ACP but felt that it could be emotionally challenging. They recommended focusing more on planning and less on end of life. They appreciated being able to include loved ones and recommended adding resources for caregivers. Conclusions: Study findings support the preliminary usability and acceptability of the PACT website. Findings will be used to inform a modified prototype of the PACT website that is interactive and ready for field testing with patients with advanced cancer and their loved ones. Innovation: We utilized a novel application of the shared mind framework to support patients with advanced cancer in engaging their loved ones in the ACP process.

引用

页数：10

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