Adapting to HIV: The Paradoxes of Autonomy and Vulnerability Among Young People Living with HIV in Tororo District, Eastern Uganda-A Qualitative Study

被引:0
作者
Ikwara, Emmanuel Asher [1 ]
Isiko, Isaac [2 ]
机构
[1] Makerere Univ, Coll Hlth Sci, Child Hlth & Dev Ctr, Sch Med, Kampala, Uganda
[2] Nims Univ, Axel Pries Inst Publ Hlth & Biomed Sci, Dept Community Med, Jaipur, Rajasthan, India
关键词
HIV; autonomy; vulnerability; stigma; young people; peer support; social support; HIV/AIDS; STIGMA;
D O I
10.2147/HIV.S521473
中图分类号
R51 [传染病];
学科分类号
100401 ;
摘要
Background: HIV is a significant public health issue in Uganda, particularly among young people (15-24 years), with an estimated 150,000 living with the virus. This study examines the paradoxes of autonomy and vulnerability experienced by young people living with HIV (YPLHIV) in Tororo District, Uganda. It explores how stigma, social support, and healthcare systems shape their experiences, influencing both their autonomy and vulnerability. Methods: This qualitative study in Tororo District explored the autonomy and vulnerability of young people living with HIV, using 18 in-depth interviews and 3 focus group discussions to examine personal, social, and healthcare influences. Results: Findings reveal how stigma, social isolation, and dependence on family support impact autonomy. Participants highlighted the importance of peer support, healthcare empowerment, and resilience in managing HIV. While struggling with medication adherence and gendered expectations, many expressed a desire for independence while acknowledging the critical role of support systems in maintaining their well-being. Conclusions and Recommendations: This study explores the tension between autonomy and vulnerability among young people living with HIV in Uganda, emphasizing the roles of stigma, social support, and healthcare providers. Recommendations include stigma reduction, peer support integration, and family involvement in care.
引用
收藏
页码:121 / 134
页数:14
相关论文
共 23 条
[1]   Experiences of stigma and access to HAART in children and adolescents living with HIV/AIDS in Brazil [J].
Abadía-Barrero, CE ;
Castro, A .
SOCIAL SCIENCE & MEDICINE, 2006, 62 (05) :1219-1228
[2]   Patient-provider perspectives on self-management support and patient empowerment in chronic care: A mixed-methods study in a rural sub-Saharan setting [J].
Angwenyi, Vibian ;
Aantjes, Carolien ;
Bunders-Aelen, Joske ;
Lazarus, Jeffrey V. ;
Criel, Bart .
JOURNAL OF ADVANCED NURSING, 2019, 75 (11) :2980-2994
[3]   Factors influencing long-term medication non-adherence among diabetes and hypertensive patients in Ghana: A qualitative investigation [J].
Atinga, Roger A. ;
Yarney, Lily ;
Gavu, Narissa Minta .
PLOS ONE, 2018, 13 (03)
[4]  
Casamayor M, 2024, Healthcare Access and Use Among Undocumented Latinx Individuals Living with HIV
[5]  
Eccles J, 2003, CROSS CONT, P383
[6]  
Evans R., 2009, EMOTION SPACE SOC, V2, P111, DOI DOI 10.1016/J.EMOSPA.2009.08.003
[7]   Using Mixed methods to develop and evaluate complex interventions in palliative care research [J].
Farquhar, Morag C. ;
Ewing, Gail ;
Booth, Sare .
PALLIATIVE MEDICINE, 2011, 25 (08) :748-757
[8]  
Jones RL, 2022, The Experiences of Families of Children and Young People with Chronic Illness Within Education
[9]  
Kabogo JM, 2019, Prevalence and risk factors of virologic failure and HIV-1 drug resistance among children and adolescents in Nairobi
[10]   "That courage to encourage": Participation and Aspirations in Chat-based Peer Support for Youth Living with HIV [J].
Karusala, Naveena ;
Seeh, David ;
Mugo, Cyrus ;
Guthrie, Brandon ;
Moreno, Megan ;
John-Stewart, Grace ;
Inwani, Irene ;
Anderson, Richard ;
Ronen, Keshet .
CHI '21: PROCEEDINGS OF THE 2021 CHI CONFERENCE ON HUMAN FACTORS IN COMPUTING SYSTEMS, 2021,