Epilepsy Research Institute UK Sudden Unexpected Death in Epilepsy (SUDEP) workshop: Identifying the pre-clinical and clinical priorities for SUDEP research

被引:3
作者
Pickard, Hannah [1 ]
Ashby, Sammy [2 ]
Sibree, David [2 ]
Elliott, Martin [3 ]
Bhandare, Amol [4 ]
Wykes, Rob. C. [5 ,6 ]
Sen, Arjune [7 ,8 ]
机构
[1] Epilepsy Res Inst, Churchill House,35 Red Lion Sq, London, England
[2] SUDEP Act, Wantage, England
[3] Gresham Coll, London, England
[4] Univ Warwick, Sch Life Sci, Coventry, England
[5] Univ Coll Queen, Inst Neurol, Queen Sq, London, England
[6] Univ Manchester, Div Neurosci, Manchester, England
[7] Univ Oxford, Nuffield Dept Clin Neurosci, Oxford Epilepsy Res Grp, Oxford, England
[8] Univ Oxford, Ctr Global Epilepsy, Oxford, England
关键词
Epilepsy; Mortality; Research gaps; Risk; Seizure; MORTALITY TASK-FORCE; INTERNATIONAL LEAGUE; PREMATURE MORTALITY; INCOME COUNTRIES; RISK-FACTORS;
D O I
10.1016/j.yebeh.2025.110473
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
The Epilepsy Research Institute's Mortality, Morbidity and Risk Theme workshop on Sudden Unexpected Death in Epilepsy (SUDEP) brought together a diverse group of stakeholders, including basic science researchers, clinicians and clinical researchers, charity partners, bereaved individuals and people with epilepsy to identify important gaps in pre-clinical and clinical SUDEP research. Collectively, the SUDEP workshop highlighted recommendations for future research to address several identified gaps and the need to develop infrastructures that utilise data-driven approaches to reduce SUDEP risk. National and global cross-institution collaborations will be fundamental in driving these research efforts forward.
引用
收藏
页数:6
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