PODER Familiar: A Culturally Tailored Health Intervention for Latino Families of Children With Intellectual and Developmental Disabilities

被引:0
作者
Yu, Amy Pei-Lung [1 ]
Suarez-Balcazar, Yolanda [2 ]
Errisuriz, Vanessa L. [3 ]
Parra-Medina, Deborah [4 ]
Mirza, Mansha [2 ]
Zhang, Minyu [5 ]
Lee, Pei-Chiang [1 ]
Zeng, Weiwen [6 ]
Brown-Hollie, Jasmine P. [2 ]
Yespica Mendoza, Eduardo [1 ]
Brown, Stephany [7 ]
Vanegas, Sandra B. [1 ,7 ]
Heydarian, Nazanin M. [8 ]
Magana, Sandy [1 ,7 ]
机构
[1] Univ Texas Austin, Steve Hicks Sch Social Work, Austin, TX 78712 USA
[2] Univ Illinois, Dept Occupat Therapy, Chicago, IL USA
[3] Santa Clara Univ, Dept Publ Hlth, Santa Clara, CA USA
[4] Univ Colorado, Dept Family Med, Boulder, CO USA
[5] Univ Texas Austin, Latino Res Inst, Austin, TX USA
[6] Univ Texas Arlington, Sch Social Work, Arlington, TX USA
[7] Univ Texas Austin, Texas Ctr Disabil Studies, Austin, TX USA
[8] Univ Texas Rio Grande Valley, Sch Social Work, Edinburg, TX USA
关键词
children; culturally tailored interventions; health promotion; intellectual and developmental disabilities; Latino families; promotoras; PHYSICAL-ACTIVITY QUESTIONNAIRE; AUTISM SPECTRUM DISORDER; MULTIPLE COMPARISONS; OLDER ADULTS; BARRIERS; OUTCOMES; MOTHERS; DEPRESSION; BEHAVIORS; EFFICACY;
D O I
10.1111/jar.70048
中图分类号
G44 [教育心理学];
学科分类号
0402 ; 040202 ;
摘要
BackgroundThis two-site pilot study examined the feasibility, acceptability and preliminary outcomes of PODER Familiar, a culturally tailored intervention to promote the health and well-being of Latina family caregivers and their children with intellectual and developmental disabilities.MethodUsing the Promotora de Salud model and mixed-methods design, we co-developed PODER Familiar with Latina caregivers of children with intellectual and developmental disabilities and community stakeholders. Thirty Latina caregivers and their children with disabilities were recruited to participate in the intervention, which included 10 individual sessions and 3 group sessions.ResultsTwenty-six Latina caregivers completed all 10 individual sessions, with high intervention fidelity and satisfaction. Preliminary data showed improvements in psychosocial, behavioural, and health outcomes of Latina family caregivers and their children. Participants also highlighted cultural relevance, the value of promotoras, and positive impacts on family health behaviours.ConclusionPreliminary findings suggest that PODER Familiar is a promising approach. Recommendations are included. Trial Registration: ClinicalTrials.gov identifier: NCT05713617.ConclusionPreliminary findings suggest that PODER Familiar is a promising approach. Recommendations are included. Trial Registration: ClinicalTrials.gov identifier: NCT05713617.
引用
收藏
页数:14
相关论文
共 50 条
[21]   A pilot study of enhanced operation fit: The feasibility of a camp-based health intervention for ethnically diverse families of children with intellectual and developmental disabilities [J].
Sanner, Catherine M. ;
Neece, Cameron L. ;
Herbozo, Sylvia ;
Baum, Marti F. .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2021, 34 (02) :624-633
[22]   A Randomized Waitlist-Control Group Study of a Culturally Tailored Parent Education Intervention for Latino Parents of Children with ASD [J].
Magana, Sandy ;
Lopez, Kristina ;
Salkas, Kristen ;
Iland, Emily ;
Morales, Miguel Angel ;
Garcia Torres, Mariana ;
Zeng, Weiwen ;
Machalicek, Wendy .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2020, 50 (01) :250-262
[23]   Parental Stress in Families of Children With Autism and Other Developmental Disabilities [J].
Valicenti-McDermott, Maria ;
Lawson, Katharine ;
Hottinger, Kathryn ;
Seijo, Rosa ;
Schechtman, Merryl ;
Shulman, Lisa ;
Shinnar, Shlomo .
JOURNAL OF CHILD NEUROLOGY, 2015, 30 (13) :1728-1735
[24]   FAMILY SUPPORT INTERVENTIONS FOR FAMILIES OF ADULTS WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES [J].
Heller, Tamar ;
Schindler, Abigail .
INTERNATIONAL REVIEW OF RESEARCH IN MENTAL RETARDATION, VOL 37, 2009, 37 :299-332
[25]   BARRIERS AND FACILITATORS OF ACCESS TO EARLY INTERVENTION FOR FAMILIES WITH CHILDREN WITH DEVELOPMENTAL DISABILITIES [J].
Scott, S. ;
Totsika, V. ;
Hastings, R. .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2019, 63 (07) :740-740
[26]   Parenting Children with Intellectual and Developmental Disabilities in Asian Indian Families in the United States [J].
Zechella, Anusha Natarajan ;
Raval, Vaishali V. .
JOURNAL OF CHILD AND FAMILY STUDIES, 2016, 25 (04) :1295-1309
[27]   Families of Children with Intellectual and Developmental Disabilities: Variables Associated with Family Quality of Life [J].
Alnahdi, Ghaleb H. ;
Schwab, Susanne .
CHILDREN-BASEL, 2024, 11 (06)
[28]   Access to dental services for children with intellectual and developmental disabilities - A scoping review [J].
Ummer-Christian, Rahila ;
Iacono, Teresa ;
Grills, Nathan ;
Pradhan, Archana ;
Hughes, Nicole ;
Gussy, Mark .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2018, 74 :1-13
[29]   Examining Wellness in Children and Youth with Intellectual and Developmental Disabilities: a Scoping Review [J].
Hamdani Y. ;
Yee T. ;
Rowland E. ;
McPherson A.C. .
Current Developmental Disorders Reports, 2018, 5 (3) :165-196
[30]   The Adaptation Process of Families With Children With Intellectual Disabilities in Catalonia [J].
Mas, Joana Maria ;
Gine, Climent ;
McWilliam, Robin A. .
INFANTS & YOUNG CHILDREN, 2016, 29 (04) :335-351