The psychosocial situation of parents of children with cancer during aftercare - Results of a qualitative study

Objective Pediatric cancer can lead to late effects and long-term impairments. Even after the end of acute treatment, challenges in daily life and psychosocial distress may persist for all family members. The aim of the current study was to investigate the experiences of parents of childhood cancer survivors after the end of acute treatment regarding returning to daily life, psychosocial stressors and coping strategies. Methods In a qualitative study, we conducted semistructured interviews with parents of childhood cancer survivors up to 17 years of age. In total 30 parents (n=20 mothers and n=10 fathers) were interviewed regarding their experiences. Data were transcribed verbatim and analyzed with the program MAXQDA. For the analysis qualitative content analysis was used. Results Many parents reported changes and impairments returning to daily life after the end of acute pediatric cancer treatment. Worries regarding the health of their child and fears of relapse can be distressing especially during follow-up care examinations. Some parents also reported a support needs due to psychological distress. Facilitating aspects for coping with the disease are an open communication and leisure activities. Discussion Although daily life becomes normal with passing time, there can still be impairments and stressors for the whole family. Several recommendations for follow-up healthcare of families with childhood cancer survivors can be inferred. Conclusion Next to medical follow-up care, families of childhood cancer survivors should receive psychosocial support after the end of acute treatment to help them settle in their daily life and cope with stressors.