Perspectives of Former Caregivers of Black Older Adults Living With Dementia on Advance Care Planning

被引：0

作者：

Miller, Emika S. ^{[1
]}

Wills, Celia E. ^{[1
]}

Wilson-Lawson, Kimberly S. ^{[2
]}

Happ, Mary Beth ^{[1
]}

Tan, Alai ^{[1
]}

Monroe, Todd B. ^{[1
]}

Moss, Karen O. ^{[1
]}

机构：

[1] Ohio State Univ, Coll Nursing, Columbus, OH USA

[2] African Amer Alzheimers & Wellness Assoc, Columbus, OH USA

来源：

JOURNAL OF GERONTOLOGICAL NURSING | 2025年 / 51卷 / 06期

基金：

美国国家卫生研究院;

关键词：

HEALTH-WORKERS;

D O I：

10.3928/00989134-20250417-01

中图分类号：

R592 [老年病学]; C [社会科学总论];

学科分类号：

03 ; 0303 ; 100203 ;

摘要：

PURPOSE: To describe the perspectives of lower socioeconomic status (SES) former family caregivers of Black persons living with dementia (PLWD) on advance care planning needs and preferences for their care recipients. METHOD: Semi-structured interviews were completed with 17 lower SES former family caregivers of Black PLWD. Basic qualitative description was used for these analyses. RESULTS: Four major themes were identified: (1) Improvements Needed for Caregiver Education, (2) Caregiver Support Needs During and After Caregiving, (3) Obstacles Faced During Caregiving, and (4) Need for Restored Identity Following Care Recipient Death. Former family caregivers also expressed a desire to support current caregivers. CONCLUSION: Findings fill a critical gap in the literature by highlighting challenges faced during and after caregiving. Future research should leverage perspectives of former caregivers to assist with improving outcomes for Black caregivers, thereby promoting health equity. [Journal of Gerontological Nursing, xx(xx), xx-xx.]

引用

页码：30 / 37

页数：12

共 30 条

[1] "Falling between the cracks": Experiences of Black dementia caregivers navigating US health systems [J].