Palliative Care for Patients With End-Stage Renal Disease: An Examination of Unmet Needs and Experiencing Problems

被引:0
作者
Darawad, Muhammad W. [1 ]
Reinke, Lynn F. [2 ]
Khalil, Amani [1 ]
Melhem, Ghaith Bani [3 ]
Alnajar, Malek [2 ]
机构
[1] Univ Jordan, Sch Nursing, Amman, Jordan
[2] Univ Utah, Coll Nursing, Salt Lake City, UT 84112 USA
[3] Calif State Univ, Patricia A Chin Sch Nursing, Los Angeles, CA USA
关键词
end-stage renal disease; Jordan; palliative care; quality of life; symptom; unmet needs; CANCER;
D O I
10.1097/NJH.0000000000001104
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Patients with end-stage renal disease face numerous physical, emotional, and financial burdens, necessitating palliative care (PC) interventions. This cross-sectional study assessed the problems and unmet needs of 129 patients under renal dialysis from 6 hospitals. Findings revealed that 64.7% of participants experienced significant challenges, primarily financial difficulties (78.5%), autonomy concerns (68.8%), and a need for information (68.0%). More than half (51.9%) reported needing PC, particularly for managing fatigue (78.3%), pain (79.8%), and depression (72.9%). Unmet needs were common (47.6%), with the most notable gaps in financial support (52.5%) and information provision (50%). Correlation analysis demonstrated strong positive associations between reported problems, care needs, and unmet needs (r > 0.90, P < .001). Significant differences were observed by dialysis access type (F = 5.71, P = .001), with arteriovenous fistula patients reporting higher problems and unmet needs. Increased dialysis frequency was linked to more problems and unmet needs (F = 7.24, P < .001). In addition, patients with comorbidities experienced significantly higher problems, care needs, and unmet needs (all Ps < .001). These findings underscored the urgent need for tailored PC interventions for end-stage renal disease patients, particularly in addressing symptom management, psychosocial and spiritual support, financial support, and information deficits, to enhance their quality of life.
引用
收藏
页码:E107 / E117
页数:11
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