Implementing vocational rehabilitation for people with multiple sclerosis in the UK National Health Service: a mixed-methods feasibility study

被引:2
作者
De Dios Perez, Blanca [1 ,2 ]
Holmes, Jain [1 ]
Elder, Tracey [3 ]
Lindley, Rebecca [1 ]
Evangelou, Nikos [4 ]
das Nair, Roshan [4 ,5 ,6 ]
Senior, Caolan [1 ]
Booth, Vicky [1 ,7 ]
Hassard, Juliet [8 ]
Ford, Helen L. [9 ,10 ]
Newsome, Ian [11 ]
Radford, Kate [1 ,2 ]
机构
[1] Univ Nottingham, Ctr Rehabil & Ageing Res, Sch Med, Nottingham, England
[2] NIHR Nottingham Biomed Res Ctr, Nottingham, England
[3] Derbyshire Community Hlth Serv NHS Trust, Derby, England
[4] Univ Nottingham, Sch Med, Mental Hlth & Clin Neurosci, Nottingham, England
[5] Nottinghamshire Healthcare Trust, Inst Mental Hlth, Nottingham, England
[6] SINTEF, Hlth Div, Trondheim, Norway
[7] Nottingham Univ Hosp NHS Trust, Nottingham, England
[8] Queens Univ Belfast, Queens Business Sch, Belfast, North Ireland
[9] Leeds Teaching Hosp NHS Trust, Leeds, England
[10] Univ Leeds, Fac Med & Hlth, Leeds, England
[11] Lay Coauthor, York, England
关键词
Vocational rehabilitation; multiple sclerosis; job retention; occupational therapy; national health service; EMPLOYMENT STATUS; IMPAIRMENT; MS;
D O I
10.1080/09638288.2024.2417031
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Purpose: To implement a job retention vocational rehabilitation (VR) intervention (MSVR) for people with multiple sclerosis (MS) and their employers in the UK National Health Service (NHS). Methods: Multicentre, single-arm feasibility study with post-intervention interviews. MSVR was delivered by an occupational therapist (OT). Feasibility was assessed by recruitment rates, compliance, and practicality of delivery. Acceptability was assessed with post-intervention interviews. A survey assessed change in eight vocational outcomes (e.g., vocational goals, work instability) immediately post-intervention and at 3-month follow-up. Results: Recruitment and training an OT was challenging. Twenty participants with MS, three employers, and three healthcare professionals were recruited. All participants but one completed the intervention. Factors affecting intervention adherence included annual leave and family responsibilities. MSVR was associated with improved vocational goal attainment post-intervention (t(18) = 7.41, p = <0.001) and at follow-up (t(17) = 6.01, p = <0.001). There was no change to the remaining outcomes. Interviews identified six themes: intervention impact, accessibility of support, the OT's role, readiness for support, workplace supportiveness, and barriers to NHS delivery. Conclusion: Challenges with recruitment, identifying newly diagnosed MS participants, and understanding the OT's training needs to deliver the intervention were identified. The intervention demonstrated acceptability, but participants wanted it to continue for longer to address further needs.
引用
收藏
页码:3124 / 3136
页数:13
相关论文
共 35 条
[21]   Physiotherapists perceived role in managing anxiety in patients with relapsing-remitting multiple sclerosis: a mixed-methods study [J].
Lucas, Lauren ;
Parker, Jack .
ARCHIVES OF PHYSIOTHERAPY, 2022, 12 (01)
[22]   Physiotherapists perceived role in managing anxiety in patients with relapsing-remitting multiple sclerosis: a mixed-methods study [J].
Lauren Lucas ;
Jack Parker .
Archives of Physiotherapy, 12
[23]   Development of a Multimodal, Physiotherapist-Led, Vocational Intervention for People with Inflammatory Arthritis and Reduced Work Ability: A Mixed-Methods Design Study [J].
Bakker, N. F. ;
van Weely, S. F. E. ;
Hutting, N. ;
Heerkens, Y. F. ;
Engels, J. A. ;
Staal, J. B. ;
van der Leeden, M. ;
Boonen, A. ;
Vlieland, T. P. M. Vliet ;
Knoop, J. .
JOURNAL OF OCCUPATIONAL REHABILITATION, 2024, 34 (04) :832-846
[24]   Sensory dynamic orthoses in mild to moderate upper limb tremor in multiple sclerosis: a mixed methods feasibility study [J].
Miller, L. ;
van Wijck, F. ;
Lamont, L. ;
Preston, J. ;
Hair, M. .
CLINICAL REHABILITATION, 2016, 30 (11) :1060-1073
[25]   Distilling the essence of appraisal: a mixed methods study of people with multiple sclerosis (vol 25, pg 793, 2016) [J].
Rapkin, Bruce D. ;
Schwartz, Carolyn E. .
QUALITY OF LIFE RESEARCH, 2016, 25 (04) :807-810
[26]   Professionalising patient safety? Findings from a mixed-methods formative evaluation of the patient safety specialist role in the English National Health Service [J].
Martin, Graham ;
Pralat, Robert ;
Waring, Justin ;
Peerally, Mohammad Farhad ;
Lamont, Tara .
JOURNAL OF HEALTH SERVICES RESEARCH & POLICY, 2025, 30 (01) :40-51
[27]   MuSic Moves-co-creating a music-supported exercise programme with and for people with multiple sclerosis: a bicentre participatory mixed methods study [J].
Fasching, Bernhard ;
Mildner, Sarah ;
Fink, Franziska ;
Wanitschek, Andreas ;
Langweil, Nadine ;
Monschein, Tobias ;
Berger, Thomas ;
Leutmezer, Fritz ;
Seebacher, Barbara ;
Hotz, Isabella ;
Brenneis, Christian .
BMJ OPEN, 2024, 14 (11)
[28]   Developing a checklist for research proposals to help describe health service interventions in UK research programmes: a mixed methods study [J].
Hannah Dorling ;
Donna White ;
Sheila Turner ;
Kevin Campbell ;
Tara Lamont .
Health Research Policy and Systems, 12
[29]   A mixed-methods study of cognitive performance in persons with multiple sclerosis: Association between neuropsychological test performance and interviews about daily cognitive functioning [J].
Akbar, Nadine ;
Finlayson, Marcia .
MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2021, 52
[30]   Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) - Feasibility testing, pilot randomised controlled trial and mixed methods process evaluation [J].
Rahn, A. C. ;
Koepke, S. ;
Backhus, I ;
Kasper, J. ;
Anger, K. ;
Untiedt, B. ;
Alegiani, A. ;
Kleiter, I ;
Muehlhauser, I ;
Heesen, C. .
INTERNATIONAL JOURNAL OF NURSING STUDIES, 2018, 78 :26-36