Recruitment Challenges and Strategies in a Technology-Based Intervention for Dementia Caregivers: Descriptive Study

被引:1
作者
Ko, Eunjung [1 ]
Gao, Ye [2 ]
Wang, Peng [3 ]
Wijayasingha, Lahiru [3 ]
Wright, Kathy D. [4 ]
Gordon, Kristina C. [5 ]
Wang, Hongning [3 ]
Stankovic, John A. [3 ]
Rose, Karen M. [4 ]
机构
[1] NYU, Rory Meyers Coll Nursing, 433 1st Ave, New York, NY 10010 USA
[2] William & Mary, Comp Sci, Williamsburg, VA USA
[3] Univ Virginia, Sch Engn & Appl Sci, Charlottesville, VA USA
[4] Ohio State Univ, Coll Nursing, Columbus, OH USA
[5] Univ Tennessee, Coll Educ Hlth & Human Sci, Knoxville, TN USA
基金
美国国家科学基金会; 美国国家卫生研究院;
关键词
recruitment challenges and strategies; technology-based intervention; dementia caregivers; dementia; mobile phone; Alzheimer disease; smart health; UNITED-STATES;
D O I
10.2196/59291
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Researchers have encountered challenges in recruiting unpaid caregivers of people living with Alzheimer disease and related dementias for intervention studies. However, little is known about the reasons for nonparticipation in in-home smart health interventions in community-based settings. Objective: This study aimed to (1) assess recruitment rates in a smart health technology intervention for caregivers of people living with Alzheimer disease and related dementias and reasons for nonparticipation among them and (2) discuss lessons learned from recruitment challenges and strategies to improve recruitment. Methods: The smart health intervention was a 4-month, single-arm trial designed to evaluate an in-home, technology-based intervention that monitors stressful moments for caregiving dyads through acoustic signals and to provide the caregivers with real-time stress management strategies. The recruitment involved two main methods: on-site engagement by a recruiter from a memory clinic and social media advertising. Caregivers were screened for eligibility by phone between January 2021 and September 2023. The recruitment rates, reasons for nonparticipation, and participant demographics were analyzed using descriptive statistics. Results: Of 201 caregivers contacted, 11 were enrolled in this study. Eighty-two caregivers did not return the screening call, and others did not participate due to privacy concerns (n=30), lack of interest (n=29), and burdensome study procedures (n=26). Our recruitment strategies included addressing privacy concerns, visualizing collected data through a dashboard, boosting social media presence, increasing the recruitment budget, updating advertisements, and preparing and deploying additional study devices. Conclusions: This study highlighted barriers to participation in the smart health intervention. Despite several recruitment strategies, enrollment rates remained below expectations. These findings underscore the need for future research to explore alternative methods for increasing the recruitment of informal dementia caregivers in technology-based intervention studies. Trial Registration: ClinicalTrials.gov NCT04536701; https://clinicaltrials.gov/study/NCT04536701 International Registered Report Identifier (IRRID): RR2-10.1111/jan.14714
引用
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页数:11
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