"Time to Be Young?" - A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia

被引:0
|
作者
Haaland-Johansen, Celine [1 ]
Haugen, Ingebjorg [2 ]
Rokstad, Anne Marie Mork [1 ,3 ]
机构
[1] Vestfold Hosp Trust, Norwegian Natl Ctr Ageing & Hlth, Postboks 3103, N-2136 Tonsberg, Norway
[2] VID Specialized Univ, Fac Hlth Studies, Oslo, Norway
[3] Molde Univ Coll, Fac Hlth Sci & Social Care, Molde, Norway
来源
PATIENT-RELATED OUTCOME MEASURES | 2025年 / 16卷
关键词
dementia; young carers; young adults; course; information; ONSET DEMENTIA; CHILDREN;
D O I
10.2147/PROM.S499063
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Purpose: Being a young carer of a parent with dementia can be challenging, with many carers undertaking various practical and caring tasks. The weekend course Time to be young? gathers young carers, aiming to support them to cope with their challenges in everyday life. The aim of this study was to explore their role as a caregiver and the experienced impact of the course on their strategies of coping in their everyday life. Participants and Methods: The study had a qualitative descriptive design inspired by Lindseth and Norberg's phenomenological hermeneutical method, using individual semi-structured interviews for data collection. The participants were recruited from former participants of the course Time to be young?, and the final sample included eight participants. Results: Through the analysis, four main themes were identified: 1) Help to accept the situation, 2) A sense of community, 3) The need for information and 4) The need to live one's own life. The study found that attendance at Time to be young? for young adults having a parent with dementia affected their coping strategies in their situation as a young care. Conclusion: The study demonstrated the importance of courses like Time to be young?, and need for a meeting place, tailored information about dementia, and an opportunity to share and reflect upon their experiences as a young carer.
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