Objectives: Early pregnancy loss (EPL) affects 1 in 4 recognised pregnancies, yet often lacks patient-centred supportive care. This study assesses the feasibility and acceptance of a digital health tool to support those affected by EPL. The objectives are to (1) understand the experiences of those who have miscarried, (2) explore their methods of accessing health information, and (3) determine their preferences regarding digital tool content and design. Methods: This mixed-methods study included Canadian persons aged 18-45 years who self-reported to have experienced EPL up to 126 weeks gestation in the preceding 2 years. Recruitment was via social media and hospital posters. Participants completed an online survey and optional follow-up interview between September 2021 and April 2022. Survey responses were analysed using descriptive statistics. Interview findings are presented in a separate paper. Local ethics approval was obtained. Results: Of the 185 survey respondents, 28% revealed that they are somewhat or very dissatisfied with the overall health care they received for their miscarriage. Thirty-nine percent of survey respondents are somewhat or very dissatisfied with how their mental/emotional health was addressed. Notably, 82% supported the development of a digital health tool for EPL care. Ninety-one percent of survey respondents use the internet to access health information. Conclusions: Many participants reported dissatisfaction with their care after EPL but showed strong interest in a user-friendly digital tool that provides general information and mental health support. These findings, along with qualitative interview data, will guide the development and testing of the desired digital health tool, aiming to enhance patient experience and support after miscarriage.
机构:
Univ Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Monash Univ, Cent Clin Sch, Melbourne, Vic, Australia
Alfred Hlth, Melbourne Sexual Hlth Ctr, Carlton, Vic, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Bilardi, Jade E.
;
Sharp, Gemma
论文数: 0引用数: 0
h-index: 0
机构:
Monash Univ, Monash Alfred Psychiat Res Ctr, Melbourne, Vic, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Sharp, Gemma
;
Payne, Samantha
论文数: 0引用数: 0
h-index: 0
机构:
Pink Elephants Support Network, Sydney, NSW, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Payne, Samantha
;
Temple-Smith, Meredith J.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Alfred Hlth, Melbourne Sexual Hlth Ctr, Carlton, Vic, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
机构:
North York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
North York Gen Hosp, Toronto, ON, Canada
Univ Toronto, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Dainty, Katie N.
;
Seaton, M. Bianca
论文数: 0引用数: 0
h-index: 0
机构:
North York Gen Hosp, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Seaton, M. Bianca
;
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机构:
McLeod, Shelley
;
Tunde-Byass, Modupe
论文数: 0引用数: 0
h-index: 0
机构:
North York Gen Hosp, Toronto, ON, Canada
Univ Toronto, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Tunde-Byass, Modupe
;
Tolhurst, Elizabeth
论文数: 0引用数: 0
h-index: 0
机构:
North York Gen Hosp, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Tolhurst, Elizabeth
;
Rojas-Luengas, Vanessa
论文数: 0引用数: 0
h-index: 0
机构:
Univ British Columbia, Obstet & Gynecol, Vancouver, BC, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Rojas-Luengas, Vanessa
;
Little, Darby
论文数: 0引用数: 0
h-index: 0
机构:
Univ Toronto, Toronto, ON, Canada
Univ Toronto, Temerty Fac Med, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
机构:
Univ Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Monash Univ, Cent Clin Sch, Melbourne, Vic, Australia
Alfred Hlth, Melbourne Sexual Hlth Ctr, Carlton, Vic, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Bilardi, Jade E.
;
Sharp, Gemma
论文数: 0引用数: 0
h-index: 0
机构:
Monash Univ, Monash Alfred Psychiat Res Ctr, Melbourne, Vic, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Sharp, Gemma
;
Payne, Samantha
论文数: 0引用数: 0
h-index: 0
机构:
Pink Elephants Support Network, Sydney, NSW, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Payne, Samantha
;
Temple-Smith, Meredith J.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Melbourne, Dept Gen Practice, Carlton, Vic, Australia
Alfred Hlth, Melbourne Sexual Hlth Ctr, Carlton, Vic, AustraliaUniv Melbourne, Dept Gen Practice, Carlton, Vic, Australia
机构:
North York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
North York Gen Hosp, Toronto, ON, Canada
Univ Toronto, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Dainty, Katie N.
;
Seaton, M. Bianca
论文数: 0引用数: 0
h-index: 0
机构:
North York Gen Hosp, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Seaton, M. Bianca
;
论文数: 引用数:
h-index:
机构:
McLeod, Shelley
;
Tunde-Byass, Modupe
论文数: 0引用数: 0
h-index: 0
机构:
North York Gen Hosp, Toronto, ON, Canada
Univ Toronto, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Tunde-Byass, Modupe
;
Tolhurst, Elizabeth
论文数: 0引用数: 0
h-index: 0
机构:
North York Gen Hosp, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Tolhurst, Elizabeth
;
Rojas-Luengas, Vanessa
论文数: 0引用数: 0
h-index: 0
机构:
Univ British Columbia, Obstet & Gynecol, Vancouver, BC, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada
Rojas-Luengas, Vanessa
;
Little, Darby
论文数: 0引用数: 0
h-index: 0
机构:
Univ Toronto, Toronto, ON, Canada
Univ Toronto, Temerty Fac Med, Toronto, ON, CanadaNorth York Gen Hosp, Patient Ctr Outcomes, Toronto, ON, Canada