Childhood Cancer-Connect: Identifying solutions to elevating the cancer experience for adolescents and young adults with cancer

被引：0

作者：

Roth, Michael E. ^{[1
]}

Hawkins, Douglas S. ^{[2
]}

Merrill, Janette K. ^{[3
]}

Henderson, Tara O. ^{[4
]}

机构：

[1] Univ Texas MD Anderson Canc Ctr, Dept Pediat, Houston, TX USA

[2] Univ Washington, Sch Med, Div Hematol Oncol, Seattle Childrens Hosp, Seattle, WA USA

[3] Amer Soc Clin Oncol, Care Delivery Dept, Alexandria, VA USA

[4] Univ Chicago, Comer Childrens Hosp, Dept Pediat, 900 E 57th St, KCBD 5124, Chicago, IL 60637 USA

来源：

JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE | 2024年 / 117卷 / 02期

关键词：

INFORMATION; PATIENT; COST; CARE; ACCESS; PERSPECTIVES; DISPARITIES; ATTITUDES; SURVIVORS; ONCOLOGY;

D O I：

10.1093/jnci/djae212

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Adolescents and young adults with cancer (aged 15-39 years) experience unique challenges because of their developmental life stage, and many have limited access to support and resources. Childhood Cancer (CC)-Connect, the patient assistance component of the White House Cancer Moonshot Childhood Cancer-Data Integration for Research, Education, Care, and Clinical Trials initiative that aims to help childhood cancer families find the best care for their child, undertook a multipronged effort to identify key strategies for addressing the unique needs of adolescents and young adults with cancer. This article describes the 4 strategies that emerged to form a comprehensive framework for addressing the unmet needs of adolescents and young adults with cancer, which can improve outcomes and enhance the cancer care experience for this vulnerable population.

引用

页码：229 / 239

页数：11

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