Experiences of participation in daily life of adolescents and young adults with cerebral palsy: A scoping review

被引：1

作者：

Cleary, Stacey L. ^{[1
,2
]}

Morgan, Prue E. ^{[1
,3
]}

Wallen, Margaret ^{[4
]}

Honan, Ingrid ^{[5
]}

Shields, Nora ^{[6
]}

Munzel, Freya E. ^{[7
,8
]}

Plummer, James R. ^{[7
]}

Assaad, Cassandra ^{[7
]}

Karlsson, Petra ^{[5
]}

Culnane, Evelyn ^{[9
]}

Ding, Jacqueline Y. ^{[1
,3
]}

Holmes, Carlee ^{[1
,2
,10
]}

Dutia, Iain M. ^{[1
,11
,12
]}

Reddihough, Dinah S. ^{[1
,2
,13
]}

Imms, Christine ^{[1
,2
]}

机构：

[1] Murdoch Childrens Res Inst, Neurodisabil & Rehabil, Parkville, Vic, Australia

[2] Univ Melbourne, Dept Paediat, Parkville, Vic, Australia

[3] Monash Univ, Dept Physiotherapy, Frankston, Vic, Australia

[4] Australian Catholic Univ, Sch Allied Hlth, Fac Hlth Sci, North Sydney, NSW, Australia

[5] Univ Sydney, Cerebral Palsy Alliance, Discipline Child & Adolescent Hlth, Fac Med & Hlth,Childrens Hosp Westmead Clin Sc, Sydney, NSW, Australia

[6] La Trobe Univ, Sch Psychol & Publ Hlth, Olga Tennison Autism Res Ctr, Melbourne, Vic, Australia

[7] Murdoch Childrens Res Inst, NHMRC Ctr Res Excellence, CP Achieve, Parkville, Vic, Australia

[8] Ctr Psychosocial Res, Coburg, Vic, Australia

[9] Royal Childrens Hosp, Transit Support Serv, Parkville, Vic, Australia

[10] St Vincents Hosp Melbourne, Young Adult Complex Disabil Serv, Melbourne, Vic, Australia

[11] Australian Catholic Univ, Fac Hlth Sci, Sch Allied Hlth, Brisbane, Qld, Australia

[12] Univ Queensland, Sch Human Movement & Nutr Sci, Brisbane, Qld, Australia

[13] Royal Childrens Hosp, Neurodev & Disabil, Parkville, Vic, Australia

来源：

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | 2025年 / 67卷 / 05期

基金：

英国医学研究理事会;

关键词：

TRANSITION EXPERIENCES; ROMANTIC RELATIONSHIPS; SEXUAL-ACTIVITY; LOOKING BACK; HEALTH; CHILDREN; YOUTH; REFLECTIONS; OUTCOMES; NEEDS;

D O I：

10.1111/dmcn.16196

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

AimTo synthesize the experiences of 15- to 34-year-olds with cerebral palsy (CP) as they participate in key life situations of young adulthood.MethodA mixed-methods scoping review was undertaken and six electronic databases searched (January 2001 to August 2023). Participation foci and thematic outcomes were mapped to the International Classification of Functioning, Disability and Health. Results were integrated using a convergent integrated analysis framework, and data analysis completed through thematic synthesis. Themes were mapped to the family of Participation-Related Constructs.ResultsThirty-eight publications (32 studies; 2759 participants) were included. More participants were male (n = 1435), walked independently (n = 1319), and lived with their families (n = 1171). 'Claiming my adulthood and "doing" life' was the unifying descriptor of participation, conveying the effortful work young people felt necessary to take their places in the adult world. The physical accessibility of the environment was a significant barrier to participation, as were people's negative attitudes or misconceptions about disability. A close-knit 'circle of support', typically family members, formed a supportive foundation during this period.InterpretationYoung people with CP aim to participate fully in adult life, alongside their peers. Improved community accessibility, inclusion, and more supportive health environments would ensure they could live the lives they choose.

引用

页码：572 / 590

页数：19

共 86 条

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