ADHD in France: Role of patient and family associations

The patient association HyperSupers TDAH France, founded in 2002 and recognized as a public utility, plays a crucial role in supporting individuals with ADHD and their families. It provides personalized support, responding to over 11,000 requests in 2023, and educates the public through its vastly visited website. HyperSupers TDAH France also holds significant advocacy power. It has contributed to the development of the recommendations by the Haute Autorite de Sante - HAS - (French National Authority for Health) and actively participates in various health institutions to influence health policies. The association works in research, education, employment, and law to ensure recognition of ADHD and support for affected individuals. Collaborating with healthcare professionals and researchers, HyperSupers fosters a better understanding of ADHD and its management. It is actively involved in the national strategy on neurodevelopmental disorders (NDD). The association's main requests include establishing an ADHD research cohort, improving professional training, ensuring early diagnosis and interventions, and taking actions to enhance the academic and professional lives of individuals with ADHD. HyperSupers also advocates for changes in university curricula and for better consideration of the specific needs of individuals with ADHD in public policies. (c) 2024 Elsevier Masson SAS. All rights are reserved, including those for text and data mining, AI training, and similar technologies.