Patient Navigation in Amyotrophic Lateral Sclerosis (ALS): A Potential Approach to Timely Diagnosis

被引:0
|
作者
Mombaur, Busisiwe [1 ]
Dias, Kaiseree [2 ]
机构
[1] Columbia Univ, Neurol Inst, 710 West 168th St, New York, NY 10032 USA
[2] Univ Bristol, Bristol Med Sch, Dept Populat Hlth Sci, Bristol, England
关键词
Patient navigation; amyotrophic lateral sclerosis; delayed diagnosis; ALS; CANCER CARE; DISEASE; HEALTH; IMPACT;
D O I
10.1353/hpu.2025.a951602
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Amyotrophic lateral sclerosis (ALS) poses challenges for timely diagnosis due to its protean early manifestations and lack of definitive tests. This article explores how patient navigation interventions can expedite diagnosis, particularly for underserved patients who face disproportionately longer delays. Patient navigation has proven effective in reducing disparities in various diseases by providing guidance and support to patients and caregivers. It enhances awareness, facilitates communication with health care providers, and streamlines diagnosis. Drawing from literature on patient navigation in other diseases, this article proposes tailored adaptations for ALS diagnosis and addresses potential implementation barriers and strategies to overcome them. Integrating patient navigation into the ALS diagnostic pathway holds promise for improving efficiency, optimizing outcomes, and reducing health care disparities among underserved populations.
引用
收藏
页数:15
相关论文
共 50 条
  • [31] Proteome Analysis of Cerebrospinal Fluid in Amyotrophic Lateral Sclerosis (ALS)
    Johannes Brettschneider
    Helga Mogel
    Vera Lehmensiek
    Tino Ahlert
    Sigurd Süssmuth
    Albert C. Ludolph
    Hayrettin Tumani
    Neurochemical Research, 2008, 33 : 2358 - 2363
  • [32] Prevalence of amyotrophic lateral sclerosis (ALS), United States, 2016
    Mehta, Paul
    Raymond, Jaime
    Punjani, Reshma
    Larson, Theodore
    Bove, Frank
    Kaye, Wendy
    Nelson, Lorene M.
    Topol, Barbara
    Han, Moon
    Muravov, Oleg
    Genson, Corina
    Davis, Bryn
    Hicks, Thomas
    Horton, Kevin
    AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2022, 23 (3-4) : 220 - 225
  • [33] Neurophysiological Testing in the Diagnosis of Amyotrophic Lateral Sclerosis
    Burke, David
    NEUROLOGICAL SCIENCES AND NEUROPHYSIOLOGY, 2022, 39 (01): : 1 - 7
  • [34] Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis
    De Marchi, Fabiola
    Berry, James D.
    Chan, James
    Caldwell, Sarah
    Ellrodt, Amy
    Scalia, Jennifer
    Burke, Katherine
    Fang, Ton
    Clark Sisodia, Rachel
    Schwamm, Lee H.
    Moura, Lidia M. V. R.
    Paganoni, Sabrina
    JOURNAL OF NEUROLOGY, 2020, 267 (06) : 1754 - 1759
  • [35] Patient perspectives on transitioning to amyotrophic lateral sclerosis multidisciplinary clinics
    Schellenbere, Kerri Lynn
    Hansen, Gregory
    JOURNAL OF MULTIDISCIPLINARY HEALTHCARE, 2018, 11 : 519 - 524
  • [36] Speech intelligibility in people with Amyotrophic Lateral Sclerosis (ALS)
    Leite Neto, Lavoisier
    Franca Junior, Marcondes Cavalcante
    Chun, Regina Yu Shon
    CODAS, 2021, 33 (01):
  • [37] A specific phobia of amyotrophic lateral sclerosis (ALS phobia)
    Levitsky, G. N.
    Gilod, V. M.
    Levin, O. S.
    ZHURNAL NEVROLOGII I PSIKHIATRII IMENI S S KORSAKOVA, 2012, 112 (08) : 4 - 6
  • [38] Levamisole derivatives as immune modulators for the treatment of amyotrophic lateral sclerosis (ALS)
    Baugh, Simon D. P.
    Morrice, Jessica R.
    Reitz, Allen B.
    Shaw, Christopher A.
    Gregory-Evans, Cheryl Y.
    FUTURE MEDICINAL CHEMISTRY, 2023, 15 (08) : 651 - 659
  • [39] Palliative hypnosis approaches in the symptomatic treatment of amyotrophic lateral sclerosis (ALS)
    Franklin, John E.
    AMERICAN JOURNAL OF CLINICAL HYPNOSIS, 2025, 67 (01) : 54 - 68
  • [40] VEGF promoter haplotype and amyotrophic lateral sclerosis (ALS)
    Terry, PD
    Kamel, F
    Umbach, DM
    Lehman, TA
    Hu, H
    Sandler, DP
    Taylor, JA
    JOURNAL OF NEUROGENETICS, 2004, 18 (02) : 429 - 434