The Experience of Reflexive Hospice Care for Patients With Advanced Cancer: A Qualitative Study

被引:2
作者
Zhang, Xi [1 ,2 ]
Zeng, Tieying [1 ]
Chen, Ye [1 ]
机构
[1] Huazhong Univ Sci & Technol, Tongji Hosp, Tongji Med Coll, Dept Nursing, Wuhan, Peoples R China
[2] Huazhong Univ Sci & Technol, Tongji Med Coll, Sch Nursing, Wuhan, Peoples R China
关键词
advanced cancer; nursing research; patient; qualitative study; reflexive hospice care; PALLIATIVE CARE; END; LIFE; FORGIVENESS; DEATH; CHINA;
D O I
10.1111/jocn.17541
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
BackgroundHospice care for patients with advanced cancer mainly takes the family members and healthcare professionals as the main body and the patients as the object. There is a lack of relevant research on reflexive hospice care that considers patients as subjects.AimTo explore the experience of reflexive hospice care for patients with advanced cancer.DesignAn empirical phenomenological approach to research was conducted.MethodsData were collected using face-to-face semi-structured interviews between April 3, 2024 and May 27, 2024 in the oncology wards of two comprehensive hospitals. Purposive sampling was used to recruit 18 patients with advanced cancer receiving hospice care. Colaizzi's phenomenological analysis method was used to analyse the data. We followed the consolidated criteria for reporting qualitative research (COREQ).ResultsFour themes were identified as being relevant to the experience of reflexive hospice care for patients with advanced cancer: the absence of prior awareness, reconciling with self and others, care and concern for others, and pursuing the meaning of life.ConclusionThis study provides new insights into hospice care for patients with advanced cancer. It emphasises the importance of patients' participation as subjects in hospice care. In reflexive hospice care, patients can actively participate and express their care for others and their understanding of life, thus gaining more respect and care in the end-of-life stage. Therefore, placing patients as the subjects of hospice care and fully respecting and listening to their wishes and needs is one of the most important ways to promote the development of hospice care quality.Patient or Public ContributionNo patient or public contribution.
引用
收藏
页码:247 / 258
页数:12
相关论文
共 57 条
[21]   The Need for Hospice Care as a Preferred Environment of Death in Terminal Cancers: A Neglected Research Area in Turkey [J].
Isler, Ayse Mine ;
Yildirim, Bugra .
JOURNAL OF SOCIAL WORK IN END-OF-LIFE & PALLIATIVE CARE, 2023, 19 (01) :53-83
[22]  
Kang Z. L., 2015, J MED PHILOS, V36, P21
[23]   Exploring the association of hospice care on patient experience and outcomes of care [J].
Kleinpell, Ruth ;
Vasilevskis, Eduard E. ;
Fogg, Louis ;
Ely, E. Wesley .
BMJ SUPPORTIVE & PALLIATIVE CARE, 2019, 9 (01)
[24]   The protein nutritional status affects hope of patients in the terminal phase of cancer [J].
Kolanowski, Wojciech ;
Baczewska, Bozena ;
Lesniewski, Krzysztof .
MEDICAL HYPOTHESES, 2024, 186
[25]   Patient participation in shared decision-making in palliative care - an integrative review [J].
Kuosmanen, Lotta ;
Hupli, Maija ;
Ahtiluoto, Satu ;
Haavisto, Elina .
JOURNAL OF CLINICAL NURSING, 2021, 30 (23-24) :3415-3428
[26]   The perception of life and death in patients with end-of-life stage cancer: A systematic review of qualitative research [J].
Kyota, Ayumi ;
Kanda, Kiyoko ;
Senuma, Maiko ;
Tsukagoshi, Noriko ;
Futawatari, Tamae ;
Kondo, Yuka .
EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2023, 66
[27]   How to come to terms with facing death: a qualitative study examining the experiences of patients with terminal Cancer [J].
Kyota, Ayumi ;
Kanda, Kiyoko .
BMC PALLIATIVE CARE, 2019, 18 (1)
[28]  
Lei J., 2023, CHIN J MOD NURS, V29, P133, DOI DOI 10.3760/CMA.J.CN.115682-20220113-00200
[29]  
[李繁荣 Li Fanrong], 2023, [护理学杂志, Journal of Nursing Science], V38, P32
[30]  
Liu X. H., 2015, MED PHILOS B, V36, P43