An Assent Framework for People with Intellectual and Developmental Disabilities and Complex Communication Needs

被引:0
作者
Tullis, Christopher [1 ]
Carnett, Amarie [2 ]
机构
[1] Georgia State Univ, Dept Learning Sci, POB 3978, Atlanta, GA 30302 USA
[2] Waikato Univ, Hamilton, New Zealand
关键词
Assent; Intellectual and Developmental Disabilities; Complex Communication Needs; Intensive Support Needs; APPLIED BEHAVIOR ANALYSIS; ETHICAL CONSIDERATIONS; PREFERENCE ASSESSMENT; INFORMED CONSENT; AUTISM SPECTRUM; SOCIAL VALIDITY; CHOICE; INDIVIDUALS; UNHAPPINESS; SCHEDULES;
D O I
10.1007/s10882-025-10007-x
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
In both research and practice, gaining assent from participants is an ethical imperative in applied behavior analysis. Recent guidance for including assent-based procedures has been provided in the literature (Breaux & Smith, 2023). However, limitations for decision-making when working with individuals who have developmental disabilities and complex communication needs (CCN) may require further guidance given the range of different considerations, such as use and proficiency with an augmentative and alternative communication system (AAC). Thus, this article provides an overview of considerations for individuals with greater support needs, a framework for evaluating assent in clinical practice, suggestions for measurement, and suggestions for future research.
引用
收藏
页码:547 / 563
页数:17
相关论文
共 67 条
[1]   Choosing and choice making are not the same: Asking "what do you want for lunch?" is not self-determination [J].
Agran, Martin ;
Storey, Keith ;
Krupp, Michael .
JOURNAL OF VOCATIONAL REHABILITATION, 2010, 33 (02) :77-88
[2]  
Alai-Rosales S., 2021, DIFFERENT ROADS LEAR
[3]   PRECURSOR MANIC BEHAVIOR IN THE ASSESSMENT AND TREATMENT OF EPISODIC PROBLEM BEHAVIOR FOR A WOMAN WITH A DUAL DIAGNOSIS [J].
Allen, Marissa B. ;
Baker, Jonathan C. ;
Nuernberger, Jodi E. ;
Vargo, Kristina K. .
JOURNAL OF APPLIED BEHAVIOR ANALYSIS, 2013, 46 (03) :685-688
[4]  
[Anonymous], 2020, ETHICS CODE BEHAV AN
[5]   BALANCING THE RIGHT TO HABILITATION WITH THE RIGHT TO PERSONAL LIBERTIES - THE RIGHTS OF PEOPLE WITH DEVELOPMENTAL-DISABILITIES TO EAT TOO MANY DOUGHNUTS AND TAKE A NAP [J].
BANNERMAN, DJ ;
SHELDON, JB ;
SHERMAN, JA ;
HARCHIK, AE .
JOURNAL OF APPLIED BEHAVIOR ANALYSIS, 1990, 23 (01) :79-89
[6]  
BARTHOLOME WG, 1995, PEDIATRICS, V96, P981
[7]  
Blake Valarie, 2012, Virtual Mentor, V14, P792, DOI 10.1001/virtualmentor.2012.14.10.hlaw1-1210
[8]   Assent in applied behaviour analysis and positive behaviour support: ethical considerations and practical recommendations [J].
Breaux, Cassi A. ;
Smith, Kristin .
INTERNATIONAL JOURNAL OF DEVELOPMENTAL DISABILITIES, 2023, 69 (01) :111-121
[9]   "You can't make me!" Managing adolescent dissent to anesthesia [J].
Bryant, Brittany E. ;
Adler, Adam C. ;
Mann, David G. ;
Malek, Janet .
PEDIATRIC ANESTHESIA, 2021, 31 (04) :397-403
[10]  
Buekelman D. R., 2013, AUGMENTATIVE ALTERNA