Transitioning Care in Nephropathic Cystinosis: Overcoming Challenges in Young Adults

Nesterova G., Gahl W., Nephropathic cystinosis: late complications of a multisystemic disease, Pediatr Nephrol, 23, pp. 863-878, (2008)

Ariceta G., Camacho J.A., Fernandez-Obispo M., Et al., A coordinated transition model for patients with cystinosis: from pediatrics to adult care, Nefrologia, 36, pp. 616-630, (2016)

Levtchenko E., Servais A., Hulton S.A., Et al., Expert guidance on the multidisciplinary management of cystinosis in adolescent and adult patients, Clin Kidney J, 15, pp. 1675-1684, (2022)

Gertsman I., Johnson W.S., Nishikawa C., Gangoiti J.A., Holmes B., Barshop B.A., Diagnosis and monitoring of cystinosis using immunomagnetically purified granulocytes, Clin Chem, 62, pp. 766-772, (2016)

Ariceta G., Camacho J.A., Fernandez-Obispo M., Et al., Cystinosis in adult and adolescent patients: recommendations for the comprehensive care of cystinosis, Nefrologia, 35, pp. 304-321, (2015)

Nishi L., Langman C., Ghossein C., A nephrology pediatric to adult transition clinic: a pilot program, Kidney Med, 1, pp. 405-406, (2019)

Joslin B., Langman C., Nishi L., Ghossein C., Assessing success in transitioning of young adults from pediatric to adult kidney practice, BMC Nephrol, 21, (2020)

Raina R., Wang J., Krishnappa V., Structured transition protocol for children with cystinosis, Front Pediatr, 5, (2017)

Hohenfellner K., Deerberg-Wittram J., Coordinated, cost-effective care for rare disease: the Cystinosis Outpatient Consultation Program at RoMed, NEJM Catal Innov Care Deliv, 1, pp. 1-10, (2020)

Nesterova G., Gahl W., Nephropathic cystinosis: late complications of a multisystemic disease, Pediatr Nephrol, 23, pp. 863-878, (2008)

Ariceta G., Camacho J.A., Fernandez-Obispo M., Et al., A coordinated transition model for patients with cystinosis: from pediatrics to adult care, Nefrologia, 36, pp. 616-630, (2016)

Levtchenko E., Servais A., Hulton S.A., Et al., Expert guidance on the multidisciplinary management of cystinosis in adolescent and adult patients, Clin Kidney J, 15, pp. 1675-1684, (2022)

Gertsman I., Johnson W.S., Nishikawa C., Gangoiti J.A., Holmes B., Barshop B.A., Diagnosis and monitoring of cystinosis using immunomagnetically purified granulocytes, Clin Chem, 62, pp. 766-772, (2016)

Ariceta G., Camacho J.A., Fernandez-Obispo M., Et al., Cystinosis in adult and adolescent patients: recommendations for the comprehensive care of cystinosis, Nefrologia, 35, pp. 304-321, (2015)

Nishi L., Langman C., Ghossein C., A nephrology pediatric to adult transition clinic: a pilot program, Kidney Med, 1, pp. 405-406, (2019)

Joslin B., Langman C., Nishi L., Ghossein C., Assessing success in transitioning of young adults from pediatric to adult kidney practice, BMC Nephrol, 21, (2020)

Raina R., Wang J., Krishnappa V., Structured transition protocol for children with cystinosis, Front Pediatr, 5, (2017)

Hohenfellner K., Deerberg-Wittram J., Coordinated, cost-effective care for rare disease: the Cystinosis Outpatient Consultation Program at RoMed, NEJM Catal Innov Care Deliv, 1, pp. 1-10, (2020)