Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study

被引：0

作者：

Reichenberger, Veronika ^{[1
]}

Penn-Kekana, Loveday ^{[2
]}

Hameed, Shaffa ^{[1
]}

Shakespeare, Tom ^{[1
]}

Kuper, Hannah ^{[1
]}

机构：

[1] London Sch Hyg & Trop Med, Int Ctr Evidence Disabil, Keppel St, London WC1E 7HT, England

[2] London Sch Hyg &Trop Med, Maternal & Neonatal Hlth Grp, London, England

来源：

QUALITATIVE HEALTH RESEARCH | 2024年

基金：

英国医学研究理事会;

关键词：

social participation; disability; access to healthcare; reflexivity; participatory visual methods; INVOLVEMENT; ILLNESS; HEALTH; DONT;

D O I：

10.1177/10497323241298922

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

This paper explores the use of participatory video (PV) in a case study conducted in Arcoverde, Brazil, to address the call for greater participation of individuals with disabilities in health and social care planning and research. PV is grounded in similar concepts to the Disability Rights Movement's principle of "Nothing About Us, Without Us" and serves as a potential collaborative tool for individuals with disabilities to shape their narratives and contribute to research. The study was part of a multi-methods research project on healthcare access, with the PV research focusing on primary healthcare in Arcoverde. The researcher emphasizes the action-oriented and community-based approach, to foster an inclusive environment through workshops, story circles, and video-making. Ethical considerations prioritize informed consent and identity protection. The results underscore the potential empowering impact of PV, fostering community awareness and practical awareness among participants. The discussion emphasizes the ethical considerations, challenges, and the need for reflexivity in participatory video research.

引用

页数：12