Mental Health Experiences of Adolescents and Young Adults with Inflammatory Bowel Disease During Transition to Adult Care: A Qualitative Descriptive Study

被引：0

作者：

Allemang, Brooke ^{[1
]}

Browne, Mira ^{[1
,2
]}

Barwick, Melanie ^{[1
,3
,4
]}

Bollegala, Natasha ^{[5
]}

Fu, Nancy ^{[6
]}

Lee, Kate ^{[7
]}

Miatello, Ashleigh ^{[1
]}

Dekker, Emily ^{[7
]}

Nistor, Irina ^{[7
,8
]}

Kohut, Sara Ahola ^{[1
,9
]}

Keefer, Laurie ^{[10
]}

Micsinszki, Samantha ^{[11
,12
]}

Walters, Thomas D. ^{[1
,9
,13
,14
]}

Griffiths, Anne M. ^{[1
]}

Mack, David R. ^{[15
,16
]}

Lawrence, Sally ^{[17
]}

Kroeker, Karen I. ^{[18
]}

de Guzman, Jacqueline ^{[7
]}

Tausif, Aalia ^{[7
]}

Maini, Pranshu ^{[2
]}

Tersigni, Claudia ^{[1
]}

Anthony, Samantha J. ^{[1
,19
]}

Benchimol, Eric I. ^{[1
,9
,13
,14
,20
]}

机构：

[1] Hosp Sick Children, SickKids Res Inst, Child Hlth Evaluat Sci, Toronto, ON, Canada

[2] McMaster Univ, Fac Hlth Sci, Hamilton, ON, Canada

[3] Univ Toronto, Dept Psychiat, Toronto, ON, Canada

[4] Univ Toronto, Dalla Lana Sch Publ Hlth, Toronto, ON, Canada

[5] Univ Toronto, Womens Coll Hosp, Dept Med, Div Gastroenterol, Toronto, ON, Canada

[6] Univ British Columbia, Dept Med, Div Gastroenterol, Vancouver, BC, Canada

[7] Crohns & Colitis Canada, Toronto, ON, Canada

[8] Mt Sinai Hosp, Div Gastroenterol, Ambulatory IBD Clin, Toronto, ON, Canada

[9] Hosp Sick Children, SickKids Inflammatory Bowel Dis Ctr, Div Gastroenterol Hepatol & Nutr, Toronto, ON, Canada

[10] Icahn Sch Med Mt Sinai, Div Gastroenterol, New York, NY USA

[11] McMaster Univ, CanChild Ctr Childhood Disabil Res, Hamilton, ON, Canada

[12] McMaster Univ, Sch Rehabil Sci, Hamilton, ON, Canada

[13] Univ Toronto, Dept Paediat, Toronto, ON, Canada

[14] Univ Toronto, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada

[15] CHEO, Childrens Hosp Eastern Ontario CHEO Inflammatory B, Div Gastroenterol Hepatol & Nutr, Ottawa, ON, Canada

[16] Univ Ottawa, Dept Pediat, Ottawa, ON, Canada

[17] Univ British Columbia, BC Childrens Hosp, Div Gastroenterol Hepatol & Nutr, Vancouver, BC, Canada

[18] Univ Alberta, Dept Med, Div Gastroenterol, Edmonton, AB, Canada

[19] Univ Toronto, Factor Inwentash Fac Social Work, Toronto, ON, Canada

[20] 18 ICES, Toronto, ON, Canada

来源：

JOURNAL OF PEDIATRICS | 2024年 / 273卷

关键词：

IBD; RESILIENCE; YOUTH;

D O I：

10.1016/j.jpeds.2024.114123

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

Objective To explore the mental health experiences of adolescents and young adults (AYA) with inflammatory bowel disease (IBD) enrolled in a randomized controlled trial evaluating the impact of a multimodal transition intervention. Study design Virtual semistructured interviews were held with 21 AYA aged 16 through 18 years with IBD. Guided by qualitative description, interviews were digitally recorded, transcribed verbatim, and analyzed using an inductive approach to reflexive thematic analysis. Results Three themes were generated from the data: (1) a continuum of integration between IBD and personal identity in adolescence and young adulthood; (2) manifestations of the mind-gut connection among AYA with IBD; and (3) hopes and priorities for addressing mental health in IBD care. Conclusions AYA with IBD endorsed the criticality of incorporating mental health discussions into routine care during the transition to adult care, given the co-occurrence of psychosocial stressors throughout this period. A series of factors promoting and hindering the integration of IBD into one's identity were identified and could be explored in clinical encounters.

引用

页数：11

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