Live networks in care production with the user at the center of the treatment for multidrug-resistant tuberculosis

被引：2

作者：

Leung, Janaina Aparecida de Medeiros ^{[1
]}

Cunha, Fatima Teresinha Scarparo ^{[2
]}

Merhy, Emerson Elias ^{[3
]}

Kritski, Afranio Lineu ^{[4
]}

机构：

[1] Univ Fed Rio de Janeiro UFRJ, Fac Med FM, Posgrad Programa Posgrad Clin Med, Rua Prof Rodolpho Paulo Rocco 255,1 Andar,Sala 01D, BR-21941913 Rio De Janeiro, RJ, Brazil

[2] Univ Fed Rio de Janeiro, Dept Enfermagem Saude Publ, Escola Enfermagem Alfredo Pinto, Rio de Janeiro, RJ, Brazil

[3] UFRJ, Inst Ciencias Med, Ctr Multidisciplinar, Dept Saude Colet Mental & Familia, Macae, RJ, Brazil

[4] Univ Fed Rio de Janeiro, FM, Programa Acad TB, Rio de Janeiro, RJ, Brazil

来源：

INTERFACE-COMUNICACAO SAUDE EDUCACAO | 2024年 / 28卷

关键词：

Tuberculosis; Multidrug-resistant tuberculosis; Patient-centered care; Life-changing events; Community-based networks; PEOPLE;

D O I：

10.1590/interface.230182

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

We followed the trajectory of a guiding user undergoing treatment for multidrug-resistant tuberculosis (MDR-TB). The narratives of Live Networks in care production showed: 1) Caring in the act of living: Overcoming stigmas and cultivating bonds that help overcome discourses fostered by fear, prejudice, exclusion and invisibility of subjects; 2) Live Networks of care: The in-betweens of the norm; and 3) Interfaces of user-health worker care: How can we demystify the judgment of health workers who, subordinated to limiting protocols, often stigmatize the user as someone who "abandons the treatment"? The guiding user perceived that caring means deterritorializing oneself, expressing one's desires as power for transformation, and leaving the modus operandi towards creativity, with the user at the center of the process.

引用

页数：15

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