An easier way to die?-A qualitative interview study on specialist palliative care team members' views on dying under sedation

被引:0
作者
Bazata, Jeremias [1 ]
Meesters, Sophie [2 ,3 ]
Bozzaro, Claudia [4 ]
Handtke, Violet [1 ]
Schildmann, Jan [5 ]
Heckel, Maria [3 ,6 ]
Ostgathe, Christoph [3 ,6 ]
Bausewein, Claudia [1 ]
Schildmann, Eva [1 ,2 ,3 ]
SedPall Study Grp
机构
[1] LMU Univ Hosp, Dept Palliat Med, Munich, Germany
[2] Univ Augsburg, Fac Med, Palliat Med, Augsburg, Germany
[3] Comprehens Canc Ctr Alliance WERA CCC WERA, Wurzburg,Erlangen,Regensburg, Augsburg, Germany
[4] Univ Munster, Inst Ethics Hist & Theory Med, Munster, Germany
[5] Martin Luther Univ Halle Wittenberg, Inst Hist & Ethics Med, Med Fac, Interdisciplinary Ctr Hlth Sci, Halle, Germany
[6] Friedrich Alexander Univ Erlangen Nurnberg FAU, Dept Palliat Med, Univ Klin Erlangen, Erlangen, Germany
关键词
Deep sedation; hypnotics and sedatives; palliative care; qualitative research; terminally ill; attitude to death; OF-LIFE CARE; GOOD DEATH; CANCER-PATIENTS; UNTIL DEATH; PHYSICIANS; ATTITUDES; NURSES;
D O I
10.1177/02692163251321320
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Professionals' personal perceptions of sedated patients in the context of palliative care may influence their opinion on sedation as treatment option. However, little is known of palliative care professionals' perception of patients dying under sedation.Aim: To explore German specialist palliative care team members' views on and perception of the dying process under sedation.Design: Qualitative phenomenological study using semi-structured interviews (n = 59). Interviews took place in-person after recruitment via a contact person and were transcribed verbatim. Framework Analysis was used for analysis.Setting/participants: Physicians, nurses, psychologists, physical therapists, chaplains, and social workers from 10 palliative care units and 7 specialist palliative homecare teams across 12 German cities.Results: Participants' views on patients dying under sedation can be grouped into: (i) those who perceived an influence of sedation on the dying process with and without positive and/or negative connotations and (ii) those who saw no difference between dying with or without sedation. Positive connotations referred to the perception of sedation providing an easier path. Concerns were mainly related to the deprivation of patients regarding a conscious dying. The metaphorical description of sedation as "sleep" was common among participants.Conclusions: The wide range of perceptions of patients dying under sedation may be rooted in different judgements regarding aspects of a good death. Clarifying ideals of a good death with professionals, patients, and relatives before sedation may support transparent decision-making and help avoid conflicts or moral distress.
引用
收藏
页码:517 / 526
页数:10
相关论文
共 45 条
  • [1] International variations in clinical practice guidelines for palliative sedation: a systematic review
    Abarshi, Ebun
    Rietjens, Judith
    Robijn, Lenzo
    Caraceni, Augusto
    Payne, Sheila
    Deliens, Luc
    Van den Block, Lieve
    [J]. BMJ SUPPORTIVE & PALLIATIVE CARE, 2017, 7 (03) : 223 - 229
  • [2] Aris P., 1982, J SOC HIST, V16, P129
  • [3] Tension between continuous and deep sedation and assistance in dying: a national survey of intensive care professionals' perceptions
    Auffray, Louis
    Mora, Pierre
    Giabicani, Mikhael
    Engrand, Nicolas
    Audibert, Gerard
    Perrigault, Pierre-Francois
    Fazilleau, Claire
    Gravier-Dumonceau, Robinson
    Le Dorze, Matthieu
    [J]. ANAESTHESIA CRITICAL CARE & PAIN MEDICINE, 2024, 43 (01)
  • [4] Assessment of an Instrument to Measure Interdisciplinary Staff Perceptions of Quality of Dying and Death in a Pediatric Cardiac Intensive Care Unit
    Bailey, Valerie
    Beke, Dorothy M.
    Snaman, Jennifer M.
    Alizadeh, Faraz
    Goldberg, Sarah
    Smith-Parrish, Melissa
    Gauvreau, Kimberlee
    Blume, Elizabeth D.
    Moynihan, Katie M.
    [J]. JAMA NETWORK OPEN, 2022, 5 (05)
  • [5] The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer-Analysis from a Systematic Review of Prospective Studies
    Belar, Alazne
    Arantzamendi, Maria
    Menten, Johan
    Payne, Sheila
    Hasselaar, Jeroen
    Centeno, Carlos
    [J]. CANCERS, 2022, 14 (02)
  • [6] DEFINING A "GOOD DEATH" IN THE PEDIATRIC INTENSIVE CARE UNIT
    Broden, Elizabeth G.
    Deatrick, Janet
    Ulrich, Connie
    Curley, Martha A. Q.
    [J]. AMERICAN JOURNAL OF CRITICAL CARE, 2020, 29 (02) : 111 - 121
  • [7] Making sense of continuous sedation in end-of-life care for cancer patients: an interview study with bereaved relatives in three European countries
    Bruinsma, S. M.
    Brown, J.
    van der Heide, A.
    Deliens, L.
    Anquinet, L.
    Payne, S. A.
    Seymour, J. E.
    Rietjens, J. A. C.
    [J]. SUPPORTIVE CARE IN CANCER, 2014, 22 (12) : 3243 - 3252
  • [8] Continuous palliative sedation until death: a qualitative study of palliative care clinicians' experiences
    Guite-Verret, Alexandra
    Boivin, Jessica
    Hanna, Andrew M. R.
    Downar, James
    Bush, Shirley H.
    Marcoux, Isabelle
    Guay, Diane
    Tapp, Diane
    Lapenskie, Julie
    Gagnon, Bruno
    [J]. BMC PALLIATIVE CARE, 2024, 23 (01)
  • [9] Physicians' Opinion and Practice With the Continuous Use of Sedatives in the Last Days of Life
    Heijltjes, Madelon T.
    Morita, Tatsuya
    Mori, Masanori
    Heckel, Maria
    Klein, Carsten
    Stiel, Stephanie
    Miccinesi, Guido
    Deliens, Luc
    Robijn, Lenzo
    Stone, Patrick
    Sykes, Nigel
    Hui, David
    Krishna, Lalit
    van Delden, Johannes J. M.
    van der Heide, Agnes
    Rietjens, Judith A. C.
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2022, 63 (01) : 78 - 87
  • [10] A systematic literature review on the ethics of palliative sedation: an update (2016)
    Henry, Blair
    [J]. CURRENT OPINION IN SUPPORTIVE AND PALLIATIVE CARE, 2016, 10 (03) : 201 - 207