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- [3] [Anonymous], 2014, College Research Libraries News, V75, P294, DOI DOI 10.5860/CRLN.75.6.9137
- [4] [Anonymous], On the ethics of big data, see, Wenhong Chen and Anabel Quan-Haase, "Big Data Ethics and Politics: Toward New Understandings," Social Science Computer Review, November 14, 2018
- [5] James Popham, Jennifer Lavoie, and Nicole Coomber, "Constructing a Public Narrative of Regulations for Big Data and Analytics: Results from a Community-Driven Discussion," Social Science Computer Review, August 28, 2018. Literature that addresses ethical issues in new uses of health data, with particular attention to the re-use of EHR data, alternative approaches to patient data governance, and novel models of negotiating and ensuring patient control over their data includes: Nancy E. Kass and
- [6] Lisa M. Lee, "Ethics and Subsequent Use of Electronic Health Record Data," Journal of Biomedical Informatics 71 (July 2017): 143-46
- [7] Adam Tanner, Our Bodies, Our Data: How Companies Make Billions Selling Our Medical Records (Boston: Beacon Press, 2016)
- [8] Adam Tanner, "Patient Consent and the Commercialization of Lab Data," Clinical Chemistry 63, no. 2 (February 2017): 475-76
- [9] Corey M. Angst, "Protect My Privacy or Support the Common-Good? Ethical Questions About Electronic Health Information Exchanges," Journal of Business Ethics 90, no. S2 (November 2009): 169-78
- [10] Mhairi Aitken et al., "Public Responses to the Sharing and Linkage of Health Data for Research Purposes: A Systematic Review and Thematic Synthesis of Qualitative Studies," BMC Medical Ethics 17, no. 1 (December 2016)