The impact of a personal cancer diagnosis on adolescent and young adult cancer survivors' social connectedness: A qualitative analysis

被引:0
作者
Rao, Pooja [1 ]
Segel, Joel E. [2 ,3 ]
Bingen, Kristin [4 ]
Devine, Katie A. [5 ]
Scott, Allison M. [6 ]
Koehly, Laura M. [7 ]
Verdery, Ashton M. [2 ]
Rumbaugh, Courtney L. [8 ]
Wasserman, Emily [8 ]
Costigan, Heather J. [8 ]
Dandekar, Smita [1 ]
Rakszawski, Kevin [3 ]
Songdej, Natthapol [3 ]
Blackall, George F. [1 ]
Vasekar, Monali [3 ]
Naik, Seema [3 ]
Lengerich, Eugene J. [3 ,8 ]
Van Scoy, Lauren J. [8 ]
机构
[1] Penn State Hlth Childrens Hosp, Hershey, PA USA
[2] Penn State Univ, University Pk, PA USA
[3] Penn State Canc Inst, Hershey, PA USA
[4] Med Coll Wisconsin, Milwaukee, WI USA
[5] Rutgers Canc Inst, New Brunswick, NY USA
[6] Univ Kentucky, Lexington, KY USA
[7] NIH, Bethseda, MD USA
[8] Penn State Coll Med, Hershey, PA USA
关键词
adolescent/young adult oncology; cancer survivor; qualitative methods; social connectedness; social health; social networks; HEALTH; ASSOCIATION; SUPPORT; PEERS;
D O I
10.1177/13591053241311977
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
Adolescent/young adult cancer survivors (AYACS) are diagnosed with cancer between 15 and 39 years of age. Improving AYACS' survivorship quality is crucial-including improving social connectedness, a construct describing the quality, structure and function of social relationships. With better understanding of AYACS' social connectedness, network-based interventions can be developed to foster social health. This study explored how a personal cancer diagnosis impacts AYACS' social connectedness among 35 AYACS 15-25 years old. Three themes emerged through thematic analysis: (1) AYACS experience substantial heterogeneity related to social support needs; (2) AYACS leverage multiple relationships and resources when seeking support after a personal cancer diagnosis; (3) AYACS' individual experiences were unique in that some noted positive changes, whereas others noted negative changes in relationships within social networks, specifically with peers. These findings create a foundation to develop social programming, foster peer relationships, and incorporate social science methods to aid intervention development to strengthen AYACS' social connectedness.
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页数:16
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共 41 条
  • [1] [Anonymous], HLTH PEOPLE 2030
  • [2] [Anonymous], 2021, VERBI SOFTWARE
  • [3] Assessing the psychosocial needs and program preferences of adolescents and young adults with cancer
    Barakat, Lamia P.
    Galtieri, Liana R.
    Szalda, Dava
    Schwartz, Lisa A.
    [J]. SUPPORTIVE CARE IN CANCER, 2016, 24 (02) : 823 - 832
  • [4] Influence of the Source of Social Support and Size of Social Network on All-Cause Mortality
    Becofsky, Katie M.
    Shook, Robin P.
    Sui, Xuemei
    Wilcox, Sara
    Lavie, Carl J.
    Blair, Steven N.
    [J]. MAYO CLINIC PROCEEDINGS, 2015, 90 (07) : 895 - 902
  • [5] Do Health and Education Agencies in the United States Share Responsibility for Academic Achievement and Health? A Review of 25 Years of Evidence About the Relationship of Adolescents' Academic Achievement and Health Behaviors
    Bradley, Beverly J.
    Greene, Amy C.
    [J]. JOURNAL OF ADOLESCENT HEALTH, 2013, 52 (05) : 523 - 532
  • [6] A scoping review to map the evidence of physical activity interventions in post-treatment adolescent and young adult cancer survivors
    Caru, Maxime
    Levesque, Ariane
    Rao, Pooja
    Dandekar, Smita
    Terry, Christopher
    Brown, Valerie
    McGregor, Lisa
    Schmitz, Kathryn
    [J]. CRITICAL REVIEWS IN ONCOLOGY HEMATOLOGY, 2022, 171
  • [7] The importance of bonding to school for healthy development: Findings from the Social Development Research Group
    Catalano, RF
    Haggerty, KP
    Oesterle, S
    Fleming, CB
    Hawkins, JD
    [J]. JOURNAL OF SCHOOL HEALTH, 2004, 74 (07) : 252 - 261
  • [8] Systematic Review of Substance Use Measurement Tools in Adolescent and Young Adult Childhood Cancer Survivors
    Chardon, Marie L.
    Beal, Sarah J.
    Breen, Gabriella
    McGrady, Meghan E.
    [J]. JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 2022, 11 (04) : 333 - 345
  • [9] Providing Children and Adolescents Opportunities for Social Interaction as a Standard of Care in Pediatric Oncology
    Christiansen, Heather L.
    Bingen, Kristin
    Hoag, Jennifer A.
    Karst, Jeffrey S.
    Velazquez-Martin, Blanca
    Barakat, Lamia P.
    [J]. PEDIATRIC BLOOD & CANCER, 2015, 62 : S674 - +
  • [10] Adolescent and Young Adult Oncology, Version 2.2018
    Coccia, Peter F.
    Pappo, Alberto S.
    Beaupin, Lynda
    Borges, Virginia F.
    Borinstein, Scott C.
    Chugh, Rashmi
    Dinner, Shira
    Folbrecht, Jeanelle
    Frazier, A. Lindsay
    Goldsby, Robert
    Gubin, Alexandra
    Hayashi, Robert
    Huang, Mary S.
    Link, Michael P.
    Livingston, John A.
    Matloub, Yousif
    Millard, Frederick
    Oeffinger, Kevin C.
    Puccetti, Diane
    Reed, Damon
    Robinson, Steven
    Rosenberg, Abby R.
    Sanft, Tara
    Spraker-Perlman, Holly L.
    von Mehren, Margaret
    Wechsler, Daniel S.
    Whelan, Kimberly F.
    Yeager, Nicholas
    Gurski, Lisa A.
    Shead, Dorothy A.
    [J]. JOURNAL OF THE NATIONAL COMPREHENSIVE CANCER NETWORK, 2018, 16 (01): : 66 - 97