Framework of IBD Care Delivery Across Ages

被引:2
作者
Delen, Stefan [1 ]
Jaghult, Susanna [2 ]
Blumenstein, Irina [3 ]
Pouillon, Lieven [4 ]
Bossuyt, Peter [4 ]
机构
[1] Ziekenhuis Oost Limburg ZOL Maas Kempen, Dept Gastroenterol, Maaseik, Belgium
[2] Karolinska Inst, Dept Clin Sci & Educ, Sodersjukhuset, Stockholm, Sweden
[3] Goethe Univ, Univ Hosp, Dept Gastroenterol, Frankfurt, Germany
[4] Imelda Gen Hosp, Imelda GI Clin Res Ctr, Imeldalaan 9, B-2820 Bonheiden, Belgium
关键词
Multidisciplinary team; IBD nurse; ehealth; value based health care; INFLAMMATORY-BOWEL-DISEASE; ULCERATIVE-COLITIS; SELF-MANAGEMENT; CROHNS-DISEASE; QUALITY INDICATORS; HEALTH-CARE; OUTCOME MEASURES; SOCIAL MEDIA; FOLLOW-UP; TELEMEDICINE;
D O I
10.1093/ecco-jcc/jjae093
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
IBD care has gone through a real transformation over the last century, moving from the mere unidirectional interaction between the physician and the patient to a stronger framework with multiple stakeholders who interconnect and strengthen each other. The patient has evolved from a passive subject to the central pole in the care pathway. Key elements of the future framework include patient self-care and empowerment, and remote monitoring [eHealth]. This care will be delivered by a multidisciplinary team acknowledging the pivotal role of the IBD nurse, and emphasising and measuring the quality of its work. The big challenge for the future is to establish a financially viable model to make this evolution durable in the long term, and this by using the principles of value-based health care.
引用
收藏
页码:ii55 / ii66
页数:12
相关论文
共 109 条
[81]   N-ECCO Consensus statements on the European nursing roles in caring for patients with Crohn's disease or ulcerative colitis [J].
O'Connor, M. ;
Bager, P. ;
Duncan, J. ;
Gaarenstroom, J. ;
Younge, L. ;
Detre, P. ;
Bredin, F. ;
Dibley, L. ;
Dignass, A. ;
Barrero, M. Gallego ;
Greveson, K. ;
Hamzawi, M. ;
Ipenburg, N. ;
Keegan, D. ;
Martinato, M. ;
Gonzalo, F. Murciano ;
Donnay, S. Pino ;
Price, T. ;
Morros, A. Ramirez ;
Verwey, M. ;
White, L. ;
van de Woude, C. J. .
JOURNAL OF CROHNS & COLITIS, 2013, 7 (09) :744-764
[82]   N-ECCO survey results of nursing practice in caring for patients with Crohn's disease or ulcerative colitis in Europe [J].
O'Connor, Marian ;
Gaarenstroom, Janette ;
Kemp, Karen ;
Bagerd, Palle ;
van der Woude, C. Janneke .
JOURNAL OF CROHNS & COLITIS, 2014, 8 (10) :1300-1307
[83]   Development of Balanced Whole System Value Measures for Inflammatory Bowel Disease Care in the IBD Qorus Collaborative Using a Modified Delphi Process [J].
Oliver, Brant J. ;
Kennedy, Alice M. ;
van Deen, Welmoed K. ;
Weaver, S. Alandra ;
Heller, Caren ;
Holthoff, Megan M. ;
Bank, Jeffrey ;
Melmed, Gil Y. ;
Siegel, Corey A. ;
Nelson, Eugene C. .
INFLAMMATORY BOWEL DISEASES, 2022, 28 (03) :327-336
[84]   eHealth: Individualization of Mesalazine Treatment Through a Self-managed Web-based Solution in Mild-to-moderate Ulcerative Colitis [J].
Pedersen, Natalia ;
Thielsen, Peter ;
Martinsen, Lars ;
Bennedsen, Mette ;
Haaber, Anne ;
Langholz, Ebbe ;
Vegh, Zsuzsanna ;
Duricova, Dana ;
Jess, Tine ;
Bell, Sally ;
Burisch, Johan ;
Munkholm, Pia .
INFLAMMATORY BOWEL DISEASES, 2014, 20 (12) :2276-2285
[85]   Communicating the benefits and risks of inflammatory bowel disease therapy to patients and families [J].
Picoraro, Joseph A. ;
Rosh, Joel R. .
CURRENT OPINION IN PEDIATRICS, 2017, 29 (05) :572-577
[86]   Clinical Pharmacist Counselling Improves Long-term Medication Safety and Patient-reported Outcomes in Anti-TNF-treated Patients With Inflammatory Bowel Diseases: The Prospective, Randomized AdPhaNCED Trial [J].
Plechschmidt, Johannes ;
Fietkau, Konstantin ;
Hepp, Tobias ;
Dietrich, Peter ;
Fischer, Sarah ;
Krebs, Sabine ;
Neurath, Markus F. ;
Doerje, Frank ;
Atreya, Raja .
INFLAMMATORY BOWEL DISEASES, 2024, 31 (01) :77-86
[87]   A Review of Self-Management Interventions for People With Dementia and Mild Cognitive Impairment [J].
Quinn, Catherine ;
Toms, Gill ;
Anderson, Daniel ;
Clare, Linda .
JOURNAL OF APPLIED GERONTOLOGY, 2016, 35 (11) :1154-1188
[88]  
Rees S., 2009, JBI Library of Systematic Reviews, V7, P492, DOI DOI 10.11124/01938924-200907130-00001
[89]   Impact of Educational Level on Study Attrition and Evaluation of Web-Based Computer-Tailored Interventions: Results From Seven Randomized Controlled Trials [J].
Reinwand, Dominique A. ;
Crutzen, Rik ;
Elfeddali, Iman ;
Schneider, Francine ;
Schulz, Daniela Nadine ;
Smit, Eline Suzanne ;
Stanczyk, Nicola Esther ;
Tange, Huibert ;
Voncken-Brewster, Viola ;
Walthouwer, Michel Jean Louis ;
Hoving, Ciska ;
de Vries, Hein .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2015, 17 (10)
[90]   Guided self-management and patient-directed follow-up of ulcerative colitis: a randomised trial [J].
Robinson, A ;
Thompson, DG ;
Wilkin, D ;
Roberts, C .
LANCET, 2001, 358 (9286) :976-981