Evaluation of Health-Related Quality of Life in Romanian Patients with Dystonia Using EQ-5D-5L

被引：0

作者：

Bajenaru, Ovidiu-Lucian ^{[1
,2
]}

Nuta, Catalina-Raluca ^{[1
,2
]}

Balog, Alexandru ^{[3
]}

Avasilichioaei, Mioara ^{[4
]}

Popescu, Bogdan Ovidiu ^{[1
,4
]}

机构：

[1] Univ Med & Pharm Carol Davila, Bucharest, Romania

[2] Natl Inst Gerontol & Geriatr Ana Aslan, Bucharest, Romania

[3] Bucharest Univ Econ Studies, Doctoral Sch Econ Informat, Bucharest, Romania

[4] Colentina Clin Hosp, Dept Neurol, Bucharest, Romania

来源：

ADVANCES IN DIGITAL HEALTH AND MEDICAL BIOENGINEERING, VOL 2, EHB-2023 | 2024年 / 110卷

关键词：

Dystonia; EQ-5D-5L; Quality of Life;

D O I：

10.1007/978-3-031-62520-6_49

中图分类号：

TP39 [计算机的应用];

学科分类号：

081203 ; 0835 ;

摘要：

This study examines the quality of life among Romanian patients with dystonia using the EQ-5D-5L instrument. Responses to the EQ-5D-5L questionnaire and the Visual Analog Scale (VAS) score, together with demographic and clinical characteristics were collected. Among the 90 enrolled dystonia patients (age: 21-82 years), the highest frequency of reported "no problems" was with selfcare (65.6%), followed by mobility (41.1%), anxiety/depression (35.6%), usual activities (33.3%) and pain (17.8%). The pain was the dimension that patients were the most likely to report as "extreme", or low health status (7.8%). The EQ-5D-5L index was obtained by applying the Romanian preference value set. The mean EQ-5D-5L index and EQ-VAS score were 0.74 and 61.1, respectively. A strong correlation (0.62) between the EQ-5D-5L index and EQ VAS was found. Our results show that dystonia can negatively impact the quality of life in Romanian patients.

引用

页码：443 / 451

页数：9

共 23 条

[1] Phenomenology and classification of dystonia: A consensus update [J].

Albanese, Alberto ;

Bhatia, Kailash ;

Bressman, Susan B. ;

DeLong, Mahlon R. ;

Fahn, Stanley ;

Fung, Victor S. C. ;

Hallett, Mark ;

Jankovic, Joseph ;

Jinnah, Hyder A. ;

Klein, Christine ;

Lang, Anthony E. ;

Mink, Jonathan W. ;

Teller, Jan K. .

MOVEMENT DISORDERS, 2013, 28 (07) :863-873

[2] Convergent validation of EQ-5D-5L in patients with Parkinson's disease [J].

Alvarado-Bolanos, Alonso ;

Cervantes-Arriaga, Amin ;

Rodriguez-Violante, Mayela ;

Llorens-Arenas, Rodrigo ;

Calderon-Fajardo, Humberto ;

Millan-Cepeda, Roxanna ;

Leal-Ortega, Roberto ;

Estrada-Bellmann, Ingrid ;

Zuniga-Ramirez, Carlos .

JOURNAL OF THE NEUROLOGICAL SCIENCES, 2015, 358 (1-2) :53-57

[3]

Avasilichioaei M., 2022, Mod. Med., V29, P105

[4]

Bajenaru O.L., 2019, M INT C PARK DIS MOV, V34

[5]

Bajenaru O.L., 2023, Doctoral thesis

[6]

Bajenaru Ovidiu-Lucian, 2020, J Med Life, V13, P170, DOI 10.25122/jml-2020-0094

[7] Using the EQ-5D-5L to investigate quality-of-life impacts of disease-modifying therapy policies for people with multiple sclerosis (MS) in New Zealand [J].

Claflin, Suzi ;

Campbell, Julie A. ;

Norman, Richard ;

Mason, Deborah F. ;

Kalincik, Tomas ;

Simpson-Yap, Steve ;

Butzkueven, Helmut ;

Carroll, William M. ;

Palmer, Andrew J. ;

Blizzard, C. Leigh ;

van der Mei, Ingrid ;

Henson, Glen J. ;

Taylor, Bruce, V .

EUROPEAN JOURNAL OF HEALTH ECONOMICS, 2023, 24 (06) :939-950

[8]

Devlin N., 2022, Value sets for eq-5d-5l: a compendium, comparative review and user guide, DOI [10.1007/978-3-030-89289-0, DOI 10.1007/978-3-030-89289-0]

[9]

di Biase L., 2022, Classification of dystonia life., V12, P206

[10]

EuroQol Research Foundation, 2019, EQ-5D-5L user guide, version 3.0

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