Quantifying the burden-of-illness of Duchenne muscular dystrophy in Belgium: an interim analysis of a site-based survey

被引：0

作者：

De Waele, L. ^{[1
,2
]}

Cremers, J. ^{[3
]}

Debien, E. ^{[3
]}

Gielis, E. ^{[1
]}

Maenen, V. ^{[1
]}

Vanoppen, I. ^{[3
]}

Van Stappen, T. ^{[4
]}

Beeckman, L. ^{[4
]}

Posner, N. ^{[5
]}

Dukacz, S. ^{[5
]}

Jiang, L. ^{[5
]}

Evans, J. ^{[6
]}

Wu, Y. ^{[6
]}

Jones, C. ^{[6
]}

Meeus, L. ^{[7
]}

Claeys, K. ^{[3
,8
]}

机构：

[1] Univ Hosp Leuven, Dept Child Neurol, Leuven, Belgium

[2] Katholieke Univ Leuven, Dept Dev & Regenerat, Leuven, Belgium

[3] Univ Hosp Leuven, Dept Neurol, Leuven, Belgium

[4] Pfizer, Brussels, Belgium

[5] Pfizer, New York, NY USA

[6] Prime HCD, London, England

[7] Duchenne Parent Project Belgium, Haacht, Belgium

[8] Katholieke Univ Leuven, Lab Muscle Dis & Neuropathies, Dept Neurosci, Leuven, Belgium

来源：

NEUROMUSCULAR DISORDERS | 2024年 / 43卷

关键词：

D O I：

暂无

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

336P

引用

页数：1

共 47 条

[1] THE BURDEN-OF-ILLNESS OF DUCHENNE MUSCULAR DYSTROPHY IN JAPAN: A SOCIOECONOMIC SURVEY
Shimizu-Motohashi, Y.
Merla, V
Nagano, M.
Shima, D.
Posner, N.
Evans, J.
VALUE IN HEALTH, 2024, 27 (12)
[2] PROJECT HERCULES: A MODIFIED DELPHI SURVEY TO INFORM A BURDEN-OF-ILLNESS STUDY IN DUCHENNE MUSCULAR DYSTROPHY
Evans, J.
Rose, A.
Martin, A.
O'Hara, J.
Chandler, F.
Godfrey, J.
VALUE IN HEALTH, 2019, 22 : S870 - S870
[3] INTRODUCTION TO THE DUCHENNE MUSCULAR DYSTROPHY BURDEN-OF-ILLNESS STUDY EXPANDED (US AND SPAIN)
Castro, D.
Evans, J.
Jones, C.
Willock, R.
Wu, Y.
Reuben, E.
Hofmeister, S.
Vinci, I
Hale, J.
Selby, V
Schrader, R.
Posner, N.
Merla, V
Mahn, M.
Beaverson, K.
Alvir, J.
VALUE IN HEALTH, 2023, 26 (12) : S68 - S68
[4] Quantifying the burden of caregiving in Duchenne muscular dystrophy
Landfeldt, Erik
Lindgren, Peter
Bell, Christopher F.
Guglieri, Michela
Straub, Volker
Lochmuller, Hanns
Bushby, Katharine
JOURNAL OF NEUROLOGY, 2016, 263 (05) : 906 - 915
[5] Quantifying the burden of caregiving in Duchenne muscular dystrophy
Erik Landfeldt
Peter Lindgren
Christopher F. Bell
Michela Guglieri
Volker Straub
Hanns Lochmüller
Katharine Bushby
Journal of Neurology, 2016, 263 : 906 - 915
[6] Burden of illness in patients with Duchenne muscular dystrophy in the United States
Ong, Rose C.
El Ghachi, Amale
Castillo, Marco
PHARMACOEPIDEMIOLOGY AND DRUG SAFETY, 2018, 27 : 221 - 221
[7] THE SOCIETAL COST OF DUCHENNE MUSCULAR DYSTROPHY IN BRAZIL: A BURDEN OF ILLNESS STUDY
Grossklauss, L. F.
Sobrinho, J. C. L. B.
Fernandes, A. R.
Ferreira, P. K.
Barbosa, R. D. C. G. D. A.
Zanotelli, E.
Costa, M.
Gurgel-Giannetti, J.
Ung, B.
Iff, J.
Evans, J.
VALUE IN HEALTH, 2024, 27 (12)
[8] THE BURDEN OF ILLNESS IN DUCHENNE MUSCULAR DYSTROPHY: EVIDENCE GAPS AND RESEARCH NEEDS
Simpson, A.
McCloskey, C.
Bonemei, R.
Nair, S.
Garcia, M. J.
VALUE IN HEALTH, 2023, 26 (12) : S528 - S528
[9] THE BURDEN OF ILLNESS IN DUCHENNE MUSCULAR DYSTROPHY - HOW MUCH EVIDENCE IS AVAILABLE?
Hatswell, A. J.
Godfrey, J.
Chandler, F.
VALUE IN HEALTH, 2018, 21 : S111 - S112
[10] COST OF ILLNESS ANALYSIS OF DUCHENNE MUSCULAR DYSTROPHY IN ITALY
Fabriani, V
Marcellusi, A.
Mennini, F. S.
Giannantoni, P.
VALUE IN HEALTH, 2014, 17 (07) : A528 - A528

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