Transition from paediatric to adult health care in Poland - current problems and future challenges. Analysis of issues faced by patients with inborn errors of immunity

被引:0
作者
Bedzichowska, Agata [1 ]
Wiesik-Szewczyk, Ewa [2 ]
机构
[1] Natl Res Inst, Mil Inst Med, Dept Paediat, Paediat Nephrol & Allergol, Warsaw, Poland
[2] Natl Res Inst, Mil Inst Med, Dept Internal Med Pneumonol & Allergol, Warsaw, Poland
来源
PEDIATRIA I MEDYCYNA RODZINNA-PAEDIATRICS AND FAMILY MEDICINE | 2024年 / 20卷 / 02期
关键词
transition; adolescent health care; chronic health conditions; disabilities; inborn errors of immunity; ADOLESCENT; READINESS; CONSENSUS; AUTONOMY; YOUTH;
D O I
10.15557/PiMR.2024.0024
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
The health care system in Poland provides treatment for patients up to 18 years of age in paediatric health care facilities, whereas adult patients are treated in specialist health care facilities for adults. A critical moment for the continuity of permanent treatment for all people with chronic disease is the transition from paediatric care to adult care. Organisational, psychological, and social problems can disrupt this process, posing the risk of health deterioration, and in extreme cases, discontinuation of therapy and premature mortality among young adults. In Poland, there is no universal, coordinated, efficient, and successful model for patient transition. This article highlights potential factors contributing to the lack of fluidity in the transition process and the associated risks. Examples of models ensuring optimal transition of a paediatric patient to adult care are also presented. It seems that creating systematic, uniform patient transfer programmes is the only way to eliminate potential threats. The crucial elements in this process are postulated to include: 1) advance planning of the transition process, 2) efficient transfer of information about the patient's condition and treatment between paediatric and adult centres, 3) patient awareness of their new role in the decision-making process. The article focus on patients with inborn errors of immunity, highlighting the current experience and potential reasons for failures in the patient transition process.
引用
收藏
页码:168 / 174
页数:7
相关论文
共 31 条
  • [1] Hematopoietic stem cell transplantation for adolescents and adults with inborn errors of immunity: an EBMT IEWP study
    Albert, Michael H.
    Sirait, Tiarlan
    Eikema, Dirk-Jan
    Bakunina, Katerina
    Wehr, Claudia
    Suarez, Felipe
    Fox, Maria Laura
    Mahlaoui, Nizar
    Gennery, Andrew R.
    Lankester, Arjan C.
    Beier, Rita
    Bernardo, Maria Ester
    Bigley, Venetia
    Lindemans, Caroline A.
    Burns, Siobhan O.
    Carpenter, Ben
    Dybko, Jaroslaw
    Gungor, Tayfun
    Hauck, Fabian
    Lum, Su Han
    Balashov, Dmitry
    Meisel, Roland
    Moshous, Despina
    Schulz, Ansgar
    Speckmann, Carsten
    Slatter, Mary A.
    Strahm, Brigitte
    Uckan-Cetinkaya, Duygu
    Meyts, Isabelle
    Vallee, Tanja C.
    Wynn, Robert
    Neven, Benedicte
    Morris, Emma C.
    [J]. BLOOD, 2022, 140 (14) : 1635 - 1649
  • [2] Assessment of Youth-Friendly Health Care: A Systematic Review of Indicators Drawn From Young People's Perspectives
    Ambresin, Anne-Emmanuelle
    Bennett, Kristina
    Patton, George C.
    Sanci, Lena A.
    Sawyer, Susan M.
    [J]. JOURNAL OF ADOLESCENT HEALTH, 2013, 52 (06) : 670 - 681
  • [3] Araszkiewicz A, 2022, Curr Top Diabetes, V2, P1
  • [4] Health Care Autonomy in Children with Chronic Conditions Implications for Self-Care and Family Management
    Beacham, Barbara L.
    Deatrick, Janet A.
    [J]. NURSING CLINICS OF NORTH AMERICA, 2013, 48 (02) : 305 - +
  • [5] Bowen M.E., 2010, Clinical Diabetes, V28, p99 LP
  • [6] Clinical and psychological course of diabetes from adolescence to young adulthood - A longitudinal cohort study
    Bryden, KS
    Peveler, RC
    Stein, A
    Neil, A
    Mayou, RA
    Dunger, DB
    [J]. DIABETES CARE, 2001, 24 (09) : 1536 - 1540
  • [7] Consensus of the Italian Primary Immunodeficiency Network on transition management from pediatric to adult care in patients affected with childhood-onset inborn errors of immunity
    Cirillo, Emilia
    Giardino, Giuliana
    Ricci, Silvia
    Moschese, Viviana
    Lougaris, Vassilios
    Conti, Francesca
    Azzari, Chiara
    Barzaghi, Federica
    Canessa, Clementina
    Martire, Baldassarre
    Badolato, Raffaele
    Dotta, Laura
    Soresina, Annarosa
    Cancrini, Caterina
    Finocchi, Andrea
    Montin, Davide
    Romano, Roberta
    Amodio, Donato
    Ferrua, Francesca
    Tommasini, Alberto
    Baselli, Lucia Augusta
    Dellepiane, Rosa Maria
    Polizzi, Agata
    Chessa, Luciana
    Marzollo, Antonio
    Cicalese, Maria Pia
    Putti, Maria Caterina
    Pession, Andrea
    Aiuti, Alessandro
    Locatelli, Franco
    Plebani, Alessandro
    Pignata, Claudio
    [J]. JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 2020, 146 (05) : 967 - 983
  • [8] Retrospective, Landmark Analysis of Long-term Adult Morbidity Following Allogeneic HSCT for Inborn Errors of Immunity in Infancy and Childhood
    Day, James W.
    Elfeky, Reem
    Nicholson, Bethany
    Goodman, Rupert
    Pearce, Rachel
    Fox, Thomas A.
    Worth, Austen
    Booth, Claire
    Veys, Paul
    Carpenter, Ben
    Hough, Rachael
    Gaspar, H. Bobby
    Titman, Penny
    Ridout, Deborah
    Workman, Sarita
    Hernandes, Fernando
    Sandford, Kit
    Laurence, Arian
    Campbell, Mari
    Burns, Siobhan O.
    Morris, Emma C.
    [J]. JOURNAL OF CLINICAL IMMUNOLOGY, 2022, 42 (06) : 1230 - 1243
  • [9] EULAR/PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases
    Foster, Helen E.
    Minden, Kirsten
    Clemente, Daniel
    Leon, Leticia
    McDonagh, Janet E.
    Kamphuis, Sylvia
    Berggren, Karin
    van Pelt, Philomine
    Wouters, Carine
    Waite-Jones, Jennifer
    Tattersall, Rachel
    Wyllie, Ruth
    Stones, Simon R.
    Martini, Alberto
    Constantin, Tamas
    Schalm, Susanne
    Fidanci, Berna
    Erer, Burak
    Dermikaya, Erkan
    Ozen, Seza
    Carmona, Loreto
    [J]. ANNALS OF THE RHEUMATIC DISEASES, 2017, 76 (04) : 639 - 646
  • [10] In sickness and in health - Transition of cancer-related care for older adolescents and young adults
    Freyer, David R.
    Kibrick-Lazear, Rhonda
    [J]. CANCER, 2006, 107 (07) : 1702 - 1709