Burden and care time for dementia caregivers in the LIVE@Home.Path trial

被引:0
|
作者
Berge, Line Iden [1 ,2 ]
Angeles, Renira Corinne [1 ,3 ]
Gedde, Marie Hidle [1 ,4 ]
Faeo, Stein Erik [5 ]
Mannseth, Janne [6 ]
Vislapuu, Maarja [1 ,5 ]
Puaschitz, Natalie Genevieve Soyland [1 ,5 ,7 ]
Hillestad, Eirin [1 ,8 ]
Aarsland, Dag [9 ]
Achterberg, Wilco Peter [10 ]
Allore, Heather [11 ,12 ]
Ballard, Clive [13 ]
Li, Fan [12 ,14 ]
Selbaek, Geir [15 ,16 ,17 ]
Vahia, Ipsit Vihang [18 ,19 ]
Husebo, Bettina Sandgate [1 ,20 ]
机构
[1] Univ Bergen, Fac Med, Ctr Elderly & Nursing Home Med, Dept Global Publ Hlth & Primary Care, Bergen, Norway
[2] NKS Olaviken Gerontopsychiat Hosp, Erdal, Norway
[3] NORCE Norwegian Res Ctr, Bergen, Norway
[4] Haraldsplass Deaconess Hosp, Bergen, Norway
[5] VID Specialized Univ, Fac Hlth Studies, Dept Nursing, Bergen, Norway
[6] Univ Bergen, Fac Med, Dept Global Publ Hlth & Primary Care, Sect Epidemiol & Med Stat, Bergen, Norway
[7] Western Norway Univ Appl Sci, Bergen, Norway
[8] Dign Ctr, Bergen, Norway
[9] Kings Coll London, Inst Psychiat Psychol & Neurosci, London, England
[10] Leiden Univ, Med Ctr, Ctr Med Older People, Dept Publ Hlth & Primary Care, Leiden, Netherlands
[11] Yale Univ, Sch Med, Dept Internal Med, New Haven, CT USA
[12] Yale Sch Publ Hlth, Dept Biostat, New Haven, CT USA
[13] Univ Exeter, Med Sch, Exeter, Devon, England
[14] Yale Sch Publ Hlth, Ctr Methods Implementat & Prevent Sci, New Haven, CT USA
[15] Vestfold Hosp Trust, Norwegian Natl Advisory Unit Ageing & Hlth, Tonsberg, Norway
[16] Univ Oslo, Inst Clin Med, Fac Med, Oslo, Norway
[17] Univ Oslo, Dept Psychol, N-0316 Oslo, Norway
[18] McLean Hosp, Belmont, MA USA
[19] Harvard Med Sch, Boston, MA USA
[20] Univ Bergen, Neurosysmed Ctr, Dept Global Publ Hlth & Primary Care, Bergen, Norway
关键词
care coordination; caregiver burden; dementia; resource use; stepped wedge randomized controlled trial; SCALE;
D O I
10.1002/alz.14622
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
INTRODUCTION: We investigated the effectiveness of the multicomponent learning, innovation, volunteer support, empowerment (LIVE) intervention on caregiver burden and care time in dyads of home-dwelling people with dementia and caregivers. METHOD: A 24 month, multicenter, stepped-wedge trial, randomized dyads to receive the 6-month LIVE intervention by municipal coordinators (May 2019 to December 2021). Primary outcomes were caregiver burden assessed by Relative Stress Scale (RSS) and informal care time spent on personal activities assessed by Resource Utilization in Dementia Personal Activities of Daily Living (RUD-PADL). Analyses used an intention-to-treat. RESULTS: Two hundred eighty dyads were enrolled. Caregivers during the intervention period reported lower levels of RSS of 0.7 points (standard deviation [SD]: 0.8) compared to the caregivers in the control period. Caregivers during the intervention period reported more time spent on PADL of 11.7 hours/month (SD: 8.7) compared to caregivers during the control period; both were not statistically significant (P > 0.05). DISCUSSION: The LIVE intervention did not reduce caregiver burden or care time.
引用
收藏
页数:12
相关论文
共 50 条
  • [41] Caregiving, care burden and awareness of caregivers and patients with dementia in Asian locations: a secondary analysis
    Shim, Yong S.
    Park, Kee Hyung
    Chen, Christopher
    Dominguez, Jacqueline C.
    Kang, Kyunghun
    Kim, Hee-Jin
    Hong, Zhen
    Lin, Yu-Te
    Chu, Leung-Wing
    Jung, San
    Kim, SangYun
    BMC GERIATRICS, 2021, 21 (01)
  • [42] Caregiving, care burden and awareness of caregivers and patients with dementia in Asian locations: a secondary analysis
    Yong S. Shim
    Kee Hyung Park
    Christopher Chen
    Jacqueline C. Dominguez
    Kyunghun Kang
    Hee-Jin Kim
    Zhen Hong
    Yu-Te Lin
    Leung-Wing Chu
    San Jung
    SangYun Kim
    BMC Geriatrics, 21
  • [43] The TECH@HOME study, a technological intervention to reduce caregiver burden for informal caregivers of people with dementia: study protocol for a randomized controlled trial
    Agneta Malmgren Fänge
    Steven M. Schmidt
    Maria H. Nilsson
    Gunilla Carlsson
    Anna Liwander
    Caroline Dahlgren Bergström
    Paolo Olivetti
    Per Johansson
    Carlos Chiatti
    Trials, 18
  • [44] A randomized trial using telehealth technology to link caregivers with dementia care experts for in-home caregiving support: FamTechCare protocol
    Williams, Kristine
    Blyler, Diane
    Vidoni, Eric D.
    Shaw, Clarissa
    Wurth, JoEllen
    Seabold, Denise
    Perkhounkova, Yelena
    Van Sciver, Angela
    RESEARCH IN NURSING & HEALTH, 2018, 41 (03) : 219 - 227
  • [45] Factors associated with subjective burden among informal caregivers of home-dwelling people with dementia: a cross-sectional study
    Steinsheim, Gunn
    Malmedal, Wenche
    Follestad, Turid
    Olsen, Bonnie
    Saga, Susan
    BMC GERIATRICS, 2023, 23 (01)
  • [46] Factors associated with subjective burden among informal caregivers of home-dwelling people with dementia: a cross-sectional study
    Gunn Steinsheim
    Wenche Malmedal
    Turid Follestad
    Bonnie Olsen
    Susan Saga
    BMC Geriatrics, 23
  • [47] Association between sleep, care burden, and related factors among family caregivers at home
    Ryuno, Hirochika
    Greiner, Chieko
    Yamaguchi, Yuko
    Fujimoto, Hirokazu
    Hirota, Misato
    Uemura, Hisayo
    Iguchi, Hitoshi
    Kabayama, Mai
    Kamide, Kei
    PSYCHOGERIATRICS, 2020, 20 (04) : 385 - 390
  • [48] Usefulness of carer-held records to support informal caregivers of patients with dementia who live at home
    Sato, Shunsuke
    Kazui, Hiroaki
    Shimizu, Yoshiro
    Yoshida, Tetsuhiko
    Yoshiyama, Kenji
    Kanemoto, Hideki
    Suzuki, Yukiko
    Morikami, Toshimi
    Fujisue, Hiroshi
    Tanaka, Toshihisa
    Ikeda, Manabu
    PSYCHOGERIATRICS, 2018, 18 (03) : 166 - 174
  • [49] Care burden and depression in caregivers caring for patients with intractable neurological diseases at home in Japan
    Miyashita, Mitsunori
    Narita, Yugo
    Sakamoto, Aki
    Kawada, Norikazu
    Akiyama, Miki
    Kayama, Mami
    Suzukamo, Yoshimi
    Fukuhara, Shunichi
    JOURNAL OF THE NEUROLOGICAL SCIENCES, 2009, 276 (1-2) : 148 - 152
  • [50] A thematic analysis of Chinese people with dementia and family caregivers' experiences of home care in China
    Zhang, Xiubin
    Clarke, Charlotte L.
    Rhynas, Sarah J.
    DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2020, 19 (08): : 2821 - 2835