Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review

被引：0
作者：
Cooper, Alan P. [1 ,2 ]
Nguyen, Linda [3 ,4 ,5 ]
Irelewuyi, Oluwapolola [1 ,2 ,6 ]
Miller, Steven P. [1 ,2 ,7 ,8 ]
机构：
[1] Hosp Sick Children, Dept Paediat, Toronto, ON M5G 1X8, Canada
[2] SickKids Res Inst, Neurosci & Mental Hlth, Toronto, ON M5G 0A4, Canada
[3] Univ Calgary, Fac Social Work, Calgary, AB T2N 1N4, Canada
[4] McGill Univ, Fac Med & Hlth Sci, Montreal, PQ H4A 3J5, Canada
[5] McMaster Univ, CanChild Ctr Childhood Disabil Res, Hamilton, ON L8S 1C7, Canada
[6] McMaster Univ, Fac Hlth Sci, Hamilton, ON L8S 4L8, Canada
[7] Univ British Columbia, Dept Pediat, Vancouver, BC V6T 1Z4, Canada
[8] BC Childrens Hosp Res Inst, Vancouver, BC V5Z 4H4, Canada
来源：
CHILDREN-BASEL | 2024年 / 11卷 / 10期
基金：
加拿大健康研究院;
关键词：
patient-oriented research; patient and public involvement; research engagement; patient-partner; person with lived experience; diversity and inclusion in research; Canadian Institutes of Health Research (CIHR) pediatric research; and childhood disability research; CHILD HEALTH RESEARCH; PARTICIPATORY RESEARCH; ENGAGEMENT; PARTNERS; IMPACT;
D O I：
10.3390/children11101266
中图分类号：
R72 [儿科学];
学科分类号：
100202 ;
摘要：
It has become increasingly common for researchers to partner with patients as members of the research team and collaborate to use their lived experiences to shape research priorities, interventions, dissemination, and more. The patient-oriented research (POR) model has been adopted by both adult and pediatric health researchers. This cultural change to conducting pediatric health research brings with it new methodologies, tools, challenges, and benefits. In this review, we aim to provide guidance on how to conduct POR for pediatric populations using examples from the literature. We describe considerations for engagement before the project begins, for engagement across the research cycle, and for measurement and evaluation. We aim to show that conducting POR is feasible, beneficial, and that many common challenges and barriers can be overcome with preparation and usage of specific tools.
引用
收藏
页数：16
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