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- [32] Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate Orphanet Journal of Rare Diseases, 15
- [34] Understanding Parents' Perspectives of Support Services for People Living with Spina Bifida and/or Hydrocephalus in Ireland: A Qualitative Exploration DISABILITIES, 2021, 1 (04): : 406 - 419
- [37] "A Really Really Almost Impossible Journey" Perceived Needs and Challenges of Families Impacted by Pediatric Cancer: A Qualitative Analysis COMPREHENSIVE CHILD AND ADOLESCENT NURSING-BUILDING EVIDENCE FOR PRACTICE, 2023, 46 (04): : 277 - 294