Multi-level factors of Chinese American family caregivers of individuals with dementia during COVID-19

被引:0
作者
Hsu, Erh-Chi [1 ]
Tsai, Jenny Hsin-Chun [2 ]
Chim, Kannie [3 ]
Spigner, Clarence [4 ]
机构
[1] Johns Hopkins Univ, Sch Nursing, 525 N Wolfe St, Baltimore, MD 21205 USA
[2] Univ Washington, Sch Nursing, Dept Child Family & Populat Hlth Nursing, 1959 NE Pacific St, Seattle, WA 98195 USA
[3] One Med Sr, 306 23rd Ave S,Ste 200, Seattle, WA 98144 USA
[4] Univ Washington, Sch Publ Hlth, Dept Hlth Syst & Populat Hlth, 1959 NE Pacific St, Seattle, WA 98195 USA
关键词
Chinese American; Community-based organization; COVID-19; pandemic; Dementia; Family caregiver; BURDEN;
D O I
10.1016/j.gerinurse.2025.01.041
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Chinese American caregivers face unique hurdles for family members with dementia. This study identified individual and contextual factors influencing family caregiving and ways in which caregivers managed pandemic-related challenges. A cross-sectional qualitative study was conducted in the Northwest region of the United States. Eligible Chinese American caregivers from a community-based organization were recruited. Semi-structured interviews were in participants' preferred languages. Thematic analysis and deductive coding were used. The analysis (N = 16) showed that individual factors contained family caregivers' perceptions, coping skills, knowledge, and empathy. Interpersonal factors included the dynamic of family support and dementia symptoms of care recipients, adversely affected by the pandemic. Community factors explored the resources provided by the partnering organization and adaptations to pandemic-related challenges. Societal factors encompassed participants' reliance on spiritual support groups, the influence of filial respect, perceived Asian xenophobia during the pandemic, and the impact of immigration history and policy on caregiving experiences. (c) 2025 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.
引用
收藏
页码:200 / 206
页数:7
相关论文
共 34 条
[1]   A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic [J].
Allen, Andrew P. ;
Curran, Eileen A. ;
Duggan, Aine ;
Cryan, John F. ;
Chorcorain, Aoife Ni ;
Dinan, Timothy G. ;
Molloy, D. William ;
Kearney, Patricia M. ;
Clarke, Gerard .
NEUROSCIENCE AND BIOBEHAVIORAL REVIEWS, 2017, 73 :123-164
[2]  
[Anonymous], 2023, Dedoose Version 9.0.107
[3]  
[Anonymous], 2020, National Alliance for Caregiving: Caregiving in the United States 2020, DOI [10.26419/ppi.00103.001, DOI 10.26419/PPI.00103.001]
[4]   Thematic analysis [J].
Clarke, Victoria ;
Braun, Virginia .
JOURNAL OF POSITIVE PSYCHOLOGY, 2017, 12 (03) :297-298
[5]  
Feinberg L.F., 2017, AARP Insight on the Issues: From Research to Standard Practice: Advancing Proven Programs to Support Family Caregivers of Persons Living with Dementia
[6]   Screening for Cognitive Dysfunction Using the Rowland Universal Dementia Assessment Scale in Adults With Sickle Cell Disease [J].
Forte, Stephanie ;
Blais, Florence ;
Castonguay, Mathias ;
Fadiga, Nafanta ;
Fortier-St-Pierre, Mireille ;
Couette, Maryline ;
Ward, Richard ;
Beland, Sebastien ;
Cohn, Melanie ;
Soulieres, Denis ;
Kuo, Kevin H. M. .
JAMA NETWORK OPEN, 2021, 4 (05)
[7]   Conceptual Framework to Guide Intervention Research Across the Trajectory of Dementia Caregiving [J].
Gallagher-Thompson, Dolores ;
Bilbrey, Ann Choryan ;
Apesoa-Varano, Ester Carolina ;
Ghatak, Rita ;
Kim, Katherine K. ;
Cothran, Fawn .
GERONTOLOGIST, 2020, 60 :S29-S40
[8]   Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English-speaking regions: Before and during the COVID-19 pandemic [J].
Grycuk, Emilia ;
Chen, Yaohua ;
Almirall-Sanchez, Arianna ;
Higgins, Dawn ;
Galvin, Miriam ;
Kane, Joseph ;
Kinchin, Irina ;
Lawlor, Brian ;
Rogan, Carol ;
Russell, Gregor ;
O'Sullivan, Roger ;
Leroi, Iracema .
INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 2022, 37 (06)
[9]   A simple method to assess and report thematic saturation in qualitative research [J].
Guest, Greg ;
Namey, Emily ;
Chen, Mario .
PLOS ONE, 2020, 15 (05)
[10]   COVID-19 and Long-Term Care: the Essential Role of Family Caregivers [J].
Hindmarch, Whitney ;
McGhan, Gwen ;
Flemons, Kristin ;
McCaughey, Deirdre .
CANADIAN GERIATRICS JOURNAL, 2021, 24 (03) :195-199