Australian adaptation and external validation of Commissioning for Quality in Rheumatoid Arthritis-RA-Patient Reported Experience Measure (CQRA-RA-PREM)

被引:1
作者
Bryant, Madeleine J. [1 ,2 ,3 ]
Black, Rachel J. [1 ,2 ,3 ]
Lester, Susan [1 ,2 ]
Chand, Vibhasha [4 ]
Barrett, Claire [5 ,6 ]
Buchbinder, Rachelle [4 ]
Lassere, Marissa [7 ,8 ]
March, Lyn [9 ,10 ]
Hill, Catherine L. [1 ,2 ,3 ]
机构
[1] Univ Adelaide, Fac Hlth Sci, Sch Med, Adelaide, SA, Australia
[2] Queen Elizabeth Hosp, Rheumatol Unit, Cent Adelaide Local Hlth Network, Adelaide, SA, Australia
[3] Royal Adelaide Hosp, Rheumatol Unit, Cent Adelaide Local Hlth Network, Adelaide, SA, Australia
[4] Monash Univ, Sch Publ Hlth & Prevent Med, Musculoskeletal Hlth & Wiser Hlth Care Units, Melbourne, Vic, Australia
[5] Univ Queensland, Dept Med, Brisbane, Qld, Australia
[6] Redcliffe Hosp, Dept Rheumatol, Redcliffe, Qld, Australia
[7] Univ New South Wales, Dept Med, Sydney, NSW, Australia
[8] St George Hosp, Dept Rheumatol, Kogarah, NSW, Australia
[9] Royal North Shore Hosp, Florance & Cope Professorial Dept Rheumatol, St Leonards, NSW, Australia
[10] Univ Sydney, Inst Bone & Joint Res Kolling Inst, Dept Rheumatol, Sydney, NSW, Australia
关键词
patient experience; care quality; outcome measures; healthcare innovation; SYSTEMATIC REVIEWS; OUTCOME MEASURES;
D O I
10.1093/rap/rkae099
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objectives To evaluate the reliability and validity of an adapted Commissioning for Quality in Rheumatoid Arthritis-RA-Patient-Reported Experience Measure (CQRA-RA-PREM) for assessing care experience in an Australian rheumatology outpatient cohort. Methods Individual patient interviews were performed to check the language and completion time of the CQRA-RA-PREM before modification. Australian Rheumatology Association Database (ARAD) participants completed the CQRA-PREM-Australian version (CQRA-PREM-AU) (22 items, 5 domains), disease activity measure (RAPID-3, BASDAI) and Assessment of Quality of Life (AQOL-6D) index. Exploratory factor analysis (EFA) assessed item correlation. Cronbach's alpha assessed internal consistency. Results Individual patient interviews (n = 8, 62% male, mean age 50 years, mean disease duration 4.5 years) informed CQRA-RA-PREM modification. The ARAD survey response rate was 707/1124 (63%); 459 (65%) RA, 134 (19%) PsA, 114 (16%) AS; 67% female, mean age 62 years, mean disease duration 22 years. The median instrument completion time was 299 s (interquartile range 284-414). Scoring of responses allowed an averaged overall score. EFA extracted five factors: all items loading similarly onto factor 1, indicating validity of the overall score. The CQRA-PREM-AU score correlated with the AQOL-6D score (rho = 0.23, P < 0.01); partial correlation with disease activity was not significant (rho = 0.03, P = 0.45), indicating divergent validity. Reliability was comparable across disease subgroups (Cronbach's alpha >0.94). The mean overall score did not differ by disease subgroup [4.1 (s.d. 0.6, P = 0.73) and there was no floor/ceiling effect. Conclusion CQRA-PREM-AU is a valid and reliable instrument to measure self-reported care experience in Australian rheumatology patients and may be interpreted as an average overall numerical score.
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页数:9
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