Complex Medical Needs and Homelessness: A Case Study of the Natural Environment

被引:1
作者
Williams, Crystal S. [1 ]
Sawyer, Grace E. [2 ]
Ostrosky, Michaelene M. [2 ]
机构
[1] Ohio State Univ, Nisonger Ctr, Columbus, OH USA
[2] Univ Illinois, Champaign, IL USA
关键词
family-centered; low-incidence disabilities; disability populations; partnerships with professionals; families; home visiting; poverty; case studies; EARLY INTERVENTION; CHILDREN; PARTICIPATION; FAMILIES;
D O I
10.1177/02711214251316522
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Infants and toddlers with complex medical needs are likely to receive early intervention (EI) services, which take place in children's natural environments (NEs). Little is known about the NE of children with complex medical needs or how their EI services are implemented in consideration of their intersectional identities. In this case study, we explored the NE of one child with complex medical needs experiencing homelessness and how his EI services were embedded in his NE. We used multiple qualitative methods, including observations, interviews, document review, auto-photography, and photo-elicitation. Using thematic analysis, we developed five themes from the data: (a) description of the child's NE, (b) the family's planning and intentionality, (c) positivity and acceptance, (d) family expertise versus provider expertise, and (e) a continuum of practices. Implications relate to practices that align with a family's unique circumstances and the need for research that addresses a family's intersectional experiences navigating disability.
引用
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页数:14
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  • [1] Annamma S.A., Connor D., Ferri B., Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability, Race Ethnicity and Education, 16, 1, pp. 1-31, (2013)
  • [2] Bayer N.D., Wang H., Yu J.A., Kuo D.Z., Halterman J.S., Yue L., A national mental health profile of parents of children with medical complexity, Pediatrics, 148, 2, pp. 1-10, (2021)
  • [3] Bedell G., Coster W., Law M., Liljenquist K., Kao Y., Teplicky R., Anaby D., Khetani M.A., Community participation, supports and barriers of school-age children with and without disabilities, Archives of Physical Medicine and Rehabilitation, 94, 2, pp. 315-323, (2013)
  • [4] Blanchard S.B., Newton J.R., Didericksen K.W., Daniels M., Glosson K., Confronting racism and bias within early intervention: The responsibility of systems and individuals to influence change and advance equity, Topics in Early Childhood Special Education, 41, 1, pp. 6-17, (2021)
  • [5] Brantlinger E., Jimenez R., Klingner J., Pugach M., Richardson V., Qualitative studies in special education, Exceptional Children, 71, 2, pp. 195-207, (2005)
  • [6] Braun V., Clarke V., Reflecting on reflexive thematic analysis, Qualitative Research in Sport, Exercise and Health, 11, 4, pp. 589-597, (2019)
  • [7] Bronfenbrenner U., Toward an experimental ecology of human development, American Psychologist, 32, pp. 513-531, (1977)
  • [8] Brown S.M., Bender K., Orsi R., McCrae J.S., Phillips J.D., Rienks S., Adverse childhood experiences and their relationship to complex health profiles among child welfare-involved children: A classification and regression tree analysis, Health Services Research, 54, 4, pp. 902-911, (2019)
  • [9] Ciupe A., Salisbury C., Examining caregivers’ independence in early intervention home visit sessions, Journal of Early Intervention, 42, 4, pp. 338-358, (2020)
  • [10] Dale D., 20 disability activists using TikTok to break down stigmas, The Influence Agency, (2023)